PZ *ME Lobbyist*

Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊

I used to do things, now living small as a #pwME #MillionsMissing 👻

[PZ *ME Lobbyist* @pzneedsrest]

@AlterIvan1 He has form

https://t.co/ZwWtF8nm8b

[PZ *ME Lobbyist* @pzneedsrest]

Just a reminder that this person has made assertions about MECFS / PEM / Exercise that are false and harmful.

He does not listen to #pwME and also supports Garner et al...

[PZ *ME Lobbyist* @pzneedsrest]

Just a reminder that this person has made assertions about MECFS / PEM / Exercise that are false and harmful.

He does not listen to #pwME and also supports Garner et al...

[PZ *ME Lobbyist* @pzneedsrest]

@longcovidaragon @HarrySpoelstra Erase your disease?
It's one of the most researched topics in medical literature.
It's also not a singular disease.

Cellular energy dysfunction has been identified in ME - that's just the facts.

[PZ *ME Lobbyist* @pzneedsrest]

@HarrySpoelstra @Morgs6942 No one is "lumping them together" - this narrative needs to die. FFS.

[PZ *ME Lobbyist* @pzneedsrest]

@AlanLevinovitz @MeganEDoherty @MeganTStevenson You have no fucking idea what the risk is here.

[PZ *ME Lobbyist* @pzneedsrest]

@JoeDavidsons80 @NicholasKWolf @FinancialReview Wrong. The majority of people are women over 55 and disabled people who have not accessed DSP - both groups are heavily discriminated against.

[PZ *ME Lobbyist* @pzneedsrest]

@ompsychiatrist "As a psychiatrist..."
Yeah. Just stop right there.

[PZ *ME Lobbyist* @pzneedsrest]

@twitchyspoonie Agree!
Similarly some pwME say they don't experience pain (although I think the discomfort you experience from debilitating exhaustion is a type of pain) & pain isn't mandatory to meet ME criteria.
Fibro is pain focused, while ME centres PEM/PENE - which may include pain!

[PZ *ME Lobbyist* @pzneedsrest]

@mattymaddog_89 @SilaciousK @econoadabsurdam And - people died too. Just because you don't pay attention doesn't mean it was fine.

[PZ *ME Lobbyist* @pzneedsrest]

@mattymaddog_89 @SilaciousK @econoadabsurdam How about actually looking that up and doing some reading?
Services existed, institutions existed, they were state funded and fragmented. The NDIS was meant to improve that. It's definitely not a perfect system but there was not nothing before.

[PZ *ME Lobbyist* @pzneedsrest]

@haydenbeamish @PinguCapital Wow you really think you are onto something don't you 🤔

[PZ *ME Lobbyist* @pzneedsrest]

@haydenbeamish @PinguCapital The majority of people on JS are women over 55.
They don't need to be "incentivised" to work. They need to not be discriminated against.

Another cohort are permanently disabled.

But - great plan - you are a truly brilliant mind. 🙃

[PZ *ME Lobbyist* @pzneedsrest]

@mjdoyleAU @MarkoMatvikov Strengthen mutual obligation" - to achieve what? More punishment?

Savings can be made by not funding job providers - who have demonstrated all they do is implement a punitive system that does not help people find suitable employment.

[PZ *ME Lobbyist* @pzneedsrest]

@mjdoyleAU @MarkoMatvikov What do you know about JS?

The largest proportion of ppl on JS are women over 55.

There are also significant numbers of disabled people on JS who have not been able to access DSP.

The criteria are already strict.

[PZ *ME Lobbyist* @pzneedsrest]

@TravGee1980 @clairlemon In some cases govt programs (Job Access) fund adjustments (equipment), and most adjustments cost very little. Often what people need are flexible work or work from home.

The main barrier is discrimination.

[PZ *ME Lobbyist* @pzneedsrest]

@clairlemon The conflation between DSP and NDIS makes no sense.

They serve different purposes.

The NDIS can't miraculously make a disabled person who cannot work, able to work - or able to work enough to not require financial support.

Most DSP recipients do not get NDIS support either.

[PZ *ME Lobbyist* @pzneedsrest]

@JeromeAdamsMD https://t.co/H11ELaxfbM

[Dr Mark Guthridge @Dr_M_Guthridge]

1. thread: #coronavirus and #MECFS

We know that #MECFS can be triggered by a range of viral pathogens

So it is likely that #coronavirus could trigger a worldwide spike in ME/CFS in the next 6-18 months

@bmj_latest
https://t.co/GmFKjbOCwr

[PZ *ME Lobbyist* @pzneedsrest]

@realaussie84 @SODavieboi @DavidShoebridge @BatmansBedroom They still pay tax.

You'll get over it.

[PZ *ME Lobbyist* @pzneedsrest]

@daly50111 @BenFordhamLive The logic and fairness is in the fact the non-citizens are permanent residents.
They pay tax and contribute the same as citizens.