A man with an uncommon type of motor neuron disease experienced improved symptoms after becoming the first person to receive a drug designed to target the genetic mutation that causes his disease
https://t.co/ua7mGaOLV0
Incoming! Three months on from THAT Glasto performance Bobby Vylan, frontman of MOBO award-winning duo Bob Vylan, is on TLTP to discuss his politics, his music, his life, Chuck D, UK supermarkets, and what he was thinking when he led the chant that launched a thousand headlines.
Watch or listen to The Louis Theroux Podcast on Spotify.
NICE has made the decision to treat tofersen, a specialised genetic therapy for a small subset of people with #ALS#MND developed in the UK, as a general therapy, condemning it to fail their assessment. We must change that decision.
Sign the petition:
https://t.co/QDPHHQsP9j
Debate rages over Alzheimer’s drug lecanemab as UK limits approval. Nature - at least this article gets a range of opinions to characterise the debate we are having. https://t.co/gfkvaEnLE1
Jenny Vaughan obituary | Doctors | The Guardian what a wonderful and passionate contribution to the good and just working lives of doctors https://t.co/98ovsnnWJd
Five people with Parkinson’s – Five songs created using their tremors & personal stories. Each is unique, like Parkinson’s itself, that affects people in different ways.
Listen to their tracks & find out more here: https://t.co/hbpgw9jJfp
#tremorsvstremors#parkinsons
The new UK Motor Neuron Disease Research Institute (UK MND RI) launches today, bringing together a virtual network of MND labs, clinical centres and researchers carrying out world leading research across the UK to accelerate the search for a cure for #MND. https://t.co/NQmptjcw9A
Verbal Fluency - the cognitive ESR !
Quick, simple and very sensitive: accuracy 95-99% for patient vs healthy. But, not usefully disease specific
See @HendersonShalom@mrccbu analysis of n=139 patients with bvFTD, svPA, nfvPPA, AD/MCI, PSP and CBS
https://t.co/YG2TVYHGdk
So pleased to finally see the second paper from PhD out! We used Subtype and Stage Inference on a large imaging cohort of PSP patients (RS and variant syndromes) to identify unique spatiotemporal patterns of atrophy..
https://t.co/klp5Fy2KhG
1/3
A wonderfully eloquent article by the brilliant Greg Scott on how personal experience of a neurological condition can be positively transformational @PracticalNeurol https://t.co/trZUsVZ11h
We aren’t winning in academic clinical training. I find it hard to see how you can complete training as an academic, specialist and dual accredited in medicine (group 1) before age 40. It’s completely wrong medical leaders have messed up here. need a stronger voice #MedTwitter
Check out our review just published in @JNNP_BMJ of a diagnostic approach in adult-onset neurometabolic diseases with a focus on treateable ones! Being familiar with these #metabolic diseases is a must for any #neurologist@NeurosciencesSU https://t.co/LHv2HzZYkQ
Motor neurone disease: Edinburgh scientists reveal breakthrough - BBC News. We’re blessed to have clinical academics of the calibre of @DrArpan100 @EuansCentre providing longer term hope for future successes with #mndsmart#mnd#als 👋🏾👍🏾 https://t.co/S2U6ejiVTT
Diabetes medications and risk of Parkinson’s disease: a cohort study of patients with diabetes https://t.co/NQxOfi8ZGG Really delighted with the results of this study from a database of >15 million people- clear signal that diabetes drugs can influence the risk of Parkinson’s.