RareGuru | Rare Disease App

Connecting patients & caregivers with rare diseases or chronic illnesses. Download the free #rareguru app on iOS & Android. Connect share, & learn 📲 🧬

[RareGuru | Rare Disease App @RareGuruApp]

"RareGuru encourages people to “become the patient zero” for their own disease, disorder, or syndrome. Patients can connect with other people with similar symptoms or diagnoses through the app, and caregivers can also get support" ⁦@healthmagazine⁩ https://t.co/v6upsNMi84

[RareGuru | Rare Disease App @RareGuruApp]

@PatientWorthy @camraredisease Thank you ❤️🧬

[Patient Worthy @PatientWorthy]

14 Year Old CEO Creates App For Rare Disease Community https://t.co/GAfdA41bQH #raredisease #rareguru #entrepreneur #patientstory #rareblooddisorder @camraredisease

[RareGuru | Rare Disease App @RareGuruApp]

@TMZ 😭😭😭😭😭😭😭

[RareGuru | Rare Disease App @RareGuruApp]

"I had a mission," says Lindsay, whose findings have improved the lives of his mother and his aunt, who also struggled with the rare disease, known as bilateral adrenal medullary hyperplasia. https://t.co/JzoA1piqkR

[Tampa Bay Wave @tampabaywave]

@abcactionnews visited the Wave to sit down with Claire Barrow, CEO of @RareGuruApp and Linda Olson, CEO of Tampa Bay Wave. Barrow is one of 15 founders of women-led tech startups accepted to our TechWomen Rising Accelerator and she's only 14-years old! https://t.co/vKxhNKGmyy

[83DegreesMedia @83DegreesMedia]

TechWomen Rising Accelerator kicks off in Tampa https://t.co/VMbdY7XZyf

[Berkeley Preparatory School @BerkeleyPrep]

Berkeley Freshman Claire Barrow was selected for the 2021 TechWomen Rising Accelerator, a program for women-led startups in Florida. Claire is CEO of ⁦@RareGuruApp⁩ - connecting people living with a rare disease. #BerkeleyExcellence #BerkeleyProud https://t.co/sHZ1x3X8D2

[RareGuru | Rare Disease App @RareGuruApp]

@DOHHillsborough Has anyone been able to make appointments? Will you notify us when all the appointments have been taken?

[RareGuru | Rare Disease App @RareGuruApp]

@DOHHillsborough @HillsboroughFL The server has been completely down since 9 AM. Please advise

[RareGuru | Rare Disease App @RareGuruApp]

Bolt is now accepting applications for his New Year’s kiss. But first, 🍾. Happy New Year, stay safe 🥳

[RareGuru | Rare Disease App @RareGuruApp]

Adios 2020! It's been a real 🗑🔥 . How are you celebrating the new year?!

[RareGuru | Rare Disease App @RareGuruApp]

✌🏼 out 2020. Nowhere to go but up in 2021 🥳

[RareGuru | Rare Disease App @RareGuruApp]

Our family's 2020 Thanksgiving list was easy to fill. We would've never made it through the year without teachers and the unfollow button! What's on your list this year? #Thanksgiving2020

[Paralympic Games @Paralympics]

Limb difference is not scary. Differences should be celebrated and disability has to be normalised.

#NotAWitch calls out ‘#TheWitches’ movie for portrayal of disability 👉 https://t.co/aSY1U6TymE

[The Avalon Foundation @kc4ktaf]

It’s #Hypophosphatasia Awareness Day! #HPP is a rare genetic disease that affects the development of bones and teeth and is sometimes called "soft bones." Complications can be life-threatening.

[RareGuru | Rare Disease App @RareGuruApp]

TikTokker brings attention to rare disease with viral videos | GMA https://t.co/BwqC01s3e5

[RareGuru | Rare Disease App @RareGuruApp]

@RaysBaseball Great job Rays! You made us proud

[RareGuru | Rare Disease App @RareGuruApp]

'The VEXAS syndrome': Scientists discover a rare and deadly inflammatory disorder in men https://t.co/Ibp4p0tKQf

[RareGuru | Rare Disease App @RareGuruApp]

A family that raised $2 million for their baby's life-saving medical treatment has received it for free - CNN https://t.co/TDidCfLwxD

[RareGuru | Rare Disease App @RareGuruApp]

The only wrong vote is the one you don't cast. If you don't (or do) like what you see, VOTE ✔️🗳 *disclaimer* Penny tried to stuff the ballot box with votes for herself but was tackled before she could do any major damage! #VOTE #VoteEarly