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Rare Run LA
@rarerunla
Welcome to the Rare Run LA offical twitter for MPS/ML awareness Rare Run will be hosted at Griffith Park in LA on October 17, 2015 We cant wait to run with you!
Los Angeles, CA
Joined June 2015
52
Following
16
Followers
42
Posts
Rare Run LA
@rarerunla
over 10 years ago
@me_mependleton
I sent Helen my address to give to you. Where do you want me to send the payment? πππ
Rare Run LA
@rarerunla
over 10 years ago
If you live near North Carolina check out this awesome run for MPS/ML research this month!! https://t.co/VS2raBFUim
Rare Run LA
@rarerunla
over 10 years ago
still trying to recover from all the fun this weekend Thank you to everyone who showed up It was a blast! πππ
Rare Run LA
@rarerunla
over 10 years ago
@me_mependleton
I believe they met online through a fan page of one of the dogs then someone told them about the run& we told them to join!
Who to follow
Nat Fabry Diseas Fdn
@FabryDisease1
Our primary goal is to provide education and support to enable people with Fabry disease to live better and longer lives. @jerrywalter
INCLUDAS Publishing
@INCLUDAS
Bringing disability diversity & inclusivity into the book world. #IncludasKids #IncludasTeen #BridesInWheelchairs inΒ·cluΒ·das=being inclusive in diverse ways
CCED
@eosinophils
The Cincinnati Center for Eosinophilic Disorders (CCED) at Cincinnati Children's is a comprehensive clinical and research center for eosinophilic disorders.
Rare Run LA
@rarerunla
over 10 years ago
It really was! That was first time we have had MPS dogs at our run ever! https://t.co/y7rtkfYuco
ME Pendleton
@me_mependleton
over 10 years ago
@rarerunla
that was amazing to see all those dogs with MPS πππ
Rare Run LA
@rarerunla
over 10 years ago
Johnny the magician is here!!!
#ararerun
Rare Run LA
@rarerunla
over 10 years ago
A group photo of all of the amazing MPS dogs that joined
#ararerun
πΆππΆππΆππΆππΆ
Rare Run LA
@rarerunla
over 10 years ago
The run was amazing!
#ararerun
Rare Run LA
@rarerunla
over 10 years ago
This is Horus! He's a very special dog who has MPS. Hopefully later we can meet his other MPS dog friends! πΆππΆππΆ
Rare Run LA
@rarerunla
over 10 years ago
Look at all these awesome people helping us today! Volunteers are awesome!!! πππ
Rare Run LA
@rarerunla
over 10 years ago
This is Cora the courage bear! She's really excited about participating in
#ararerun
Rare Run LA
@rarerunla
over 10 years ago
WAIT NO MORE! A Rare Run is tomorrow! If you haven't registered don't fret You can show up& register tomorrow! πππ
Rare Run LA
@rarerunla
over 10 years ago
This is a So Cal family we have known for years. Michelle is an amazing young woman! So proud ππΌππΌππ https://t.co/7QiA6qjyaB
National MPS Society
@MPSSociety
over 10 years ago
Go Michelle!! RT
@donovanjmoore
:
#CourageAndStrength
Look at Michelle Hopkins so awesome!!!
Rare Run LA
@rarerunla
over 10 years ago
ITS OFFICIAL THE CAPES HAVE ARRIVED! Are you going to be wearing one Saturday?!
Rare Run LA
@rarerunla
over 10 years ago
4 more days! It's almost here!!! Hurry up and register so you can join this super fun event! http://t.co/T20M0vwFz5
Rare Run LA
@rarerunla
over 10 years ago
It's officially October which means there's only 16 days left to register! https://t.co/T20M0vwFz5
Rare Run LA
@rarerunla
over 10 years ago
We are stronger as a team! Create a team and help us fight for a cure! A Rare Run in 22 days! http://t.co/T20M0vwFz5
Rare Run LA
@rarerunla
almost 11 years ago
We're "flying" to SLC to help with Run The Night and raise awareness for MPS disorders!
Rare Run LA
@rarerunla
almost 11 years ago
A little over a month to go! Are you signed up for A Rare Run?! http://t.co/T20M0vwFz5
Rare Run LA
@rarerunla
almost 11 years ago
Walk/run in honor of your favorite MPS Angels! They may be gone but they're never ever forgotten π
#ararerun
#mpssux
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