Rare STRIDES®

Rare STRIDES® is an innovative technology company focused on improving quality of life for patients. Our Mission: Connecting Care to Those with Rare.

[Rare STRIDES® @RareStrides]

Children and adults with rare diseases deserve excellence in healthcare. Rare diseases are just as important to recognize as stroke. We look forward to the day when rare info is easily accessible to medical teams to help save lives!

#RareDiseaseDay2023
#MakeRareVisible

[Rare STRIDES® @RareStrides]

We are so thankful for our rare community. We appreciate our compassionate leaders and members of the medical team who are committed to the delivery of exceptional clinical care for rare patients in every medical setting. We are filled with hope as we make strides together!

[Rare STRIDES® @RareStrides]

We are so thankful for our incredible leaders who serve the rare community. THANK YOU Trena! She was nominated and selected as one of the top 24 finalists recognized by Gwinnett Chamber Moxie Awards in the On the Rise Category!

#moxieawards

[Rare STRIDES® @RareStrides]

At Rare STRIDES we are celebrating #rarediseaseday by honoring the patient journey. We are committed to #makerarevisible in every healthcare setting. We are excited about the launch of our new giving program; Rare Wish to grant wishes for children and adults with rare diseases!

[Rare STRIDES® @RareStrides]

Save the date! May 7 @cityofsuwanee Towne Center for Make Rare Visible Glow in the Dark Concert. Details will be updated on our FB event page. #makerarevisible #rarewish #rarestrides

[The Rare Disorder Podcast @RareDisorderPod]

NEW EPISODE LIVE! Link in bio to listen. This is the episode we have all been waiting for! 🦓🤍

I'm so honored to chat with Beth Nguyen. Beth is the Managing Director; Founding Partner, and President of Rare STRIDES. @RareStrides

[Rare STRIDES® @RareStrides]

Rare STRIDES is in the news! 2022 is starting out on the right path as we #makerarevisible; our passion is serving the Rare Community.
To read the article: https://t.co/mZFYJHHjUD

[Rare STRIDES® @RareStrides]

From your friends at Rare STRIDES, have a safe and Happy New Year! Together we can #makerarevisible in 2022. #rarestrides #nye #newyear #2022

[Rare STRIDES® @RareStrides]

Rare STRIDES wishes you and your family a Merry Christmas, Happy New Year, and Happy Holidays. Let's welcome 2022 with great STRIDES! #makerarevisible #rarestrides #merrychristmas #happynewyear

[Rare STRIDES® @RareStrides]

Code Rare® is an exciting program launched by a paramedic and registered nurse as a vital nationwide call to action: #MakeRareVisible

Code Rare® launched to strengthen patient safety and education about rare diseases in all medical settings. Upcoming webinar: 8/1/21

[Rare STRIDES® @RareStrides]

Meet Beth Nguyen; a compassionate registered #nurse driven to help the rare community while battling her own rare journey. Beth's passion is to pave a path forward for children and adults with rare diseases in healthcare.

https://t.co/SRL6cD1KnJ
#InternationalWomensDay

[Rare STRIDES® @RareStrides]

Today is #RareDiseaseDay and we are committed to the delivery of exceptional clinical care for children and adults impacted by rare diseases.

We care and give back though Rare Wish® and RS Nurses Speaker's Bureau® #MakeRareVisible #Healthstrides4rare

https://t.co/kAFdB3EP2e

[Rare STRIDES® @RareStrides]

There is a critical need for diagnostic excellence and care coordination for rare diseases in every medical setting. Read our first #whitepaper publication here #RareDiseases #Healthcare #healthstrides4rare #wellness #care #healthreform #digitalhealth
https://t.co/bNUsnH0SdE

[Rare STRIDES® @RareStrides]

Did you know that the rare types of Sickle Cell Disease (SCD) include HbSD, HbSE, and HbSO?

Rare STRIDES® offers blogging and preceptorship opportunities for nursing and medical school students! Read the latest blog by a student nurse here:
https://t.co/DBDJdwTkGB

[Rare STRIDES® @RareStrides]

Excited to share our first nonprofit blog submission "Crash & Burn" by the Kawasaki Disease Foundation Youth.

Artwork by KDF Youth and our Artist Hailey Edwards in honor of the late Dr. Tomisaku Kawasaki.

Join our Make Rare Visible Challenge Now!

https://t.co/hjp6Hx2VyT

[Rare STRIDES® @RareStrides]

Our first nonprofit blog comes from the Kawasaki Disease Foundation Youth (@kdfyouth on instagram). Help us make rare visible! #rarestrides #Healthcare4Rare #Kawasaki

https://t.co/IKP2cdEczy

[Rare STRIDES® @RareStrides]

Please take a moment to click on the link below, sign and share the petition to show your support.
Thank you very much!

Demand Innovation to Support Patients Battling Rare Diseases and COVID-19! #Rarediseases #COVID19 #Nurse

https://t.co/7pyqFr8HYf

[Rare STRIDES® @RareStrides]

Today is #WorldHealthDay!
Thank you to all healthcare workers...we appreciate you!
Rare STRIDES: Passionate Vision of a #Nurse Adapts Rare Innovation to Fight #COVID19

#SupportNursesAndMidwives #healthcare #technologynews https://t.co/weavX7RLa0

[The Daily Show @TheDailyShow]

Dr. Anthony Fauci answers some of the most pressing questions surrounding coronavirus: How is it spread? What makes it so insidious? What are the dangers of self-medicating? Can you get re-infected?

[Rare STRIDES® @RareStrides]

Rare STRIDES® mission is to empower patients and health teams with innovative tools to successfully navigate rare diseases; and to connect streamlined healthcare to the rare community one step at a time. #Healthstrides4rare #rarediseases #healthcare #patientsafety