Just received confirmation today that my cancer is definitively Ewing's Sarcoma as a result of NGS (genetic) panel testing.
This means that getting care from a sarcoma specialist is a mandatory step now, as Ewing's occurs so rarely.
My financial situation is still worrying because the sarcoma specialist I’m being referred to doesn’t accept my insurance, or any plan available on the Health Insurance Marketplace.
If you haven’t already, please share or donate to my GoFundMe. Thank you.