CRRAB

The Canadian #Retinoblastoma Research Advisory Board aims to create meaningful, co-directed RB research that is relevant to patients & improves outcomes.

[CRRAB @rb_research]

Did you know that the Canadian Retinoblastoma Society (@cdnrbsociety) is hosting their annual family picnic next weekend? This is a great chance for RB families to connect. Check out their page or website for more information! #retinoblastoma #community #crbs #family #picnic

[CRRAB @rb_research]

Did you know that May 10th to May 16th is #Retinoblastoma #Awareness #Week? This is a very important time in our community as we work to bring attention to #rb. Keep an eye out on our socials this week, as we will be featuring informational resources!

[CRRAB @rb_research]

We are only a few days away from the 2026 RB Symposium! Our second line up of panelists will be discussing "The RB Support Network: Stories, Strategies and Resources" on April 19th. Who will be attending this awesome panel?? 🌟 💬 #retinoblastoma #patientengagement #research

[CRRAB @rb_research]

We are officially less than one week away from the #2026RetinoblastomaResearchSymposium 🔬 Join us on Saturday April 18 at 12:15pm EST for our first panel discussion. Don't forget to sign up using the link in our bio! #Retinoblastoma #Research #CRRAB #Patientengagement 💡

[CRRAB @rb_research]

We are officially TWO weeks away from the retinoblastoma research symposium! 🔬 Don't forget to register using the link in our bio or click here: https://t.co/FhHx1LYpis

Remember: the symposium is an event for the ENTIRE FAMILY! Don't forget to bring your kiddos 🌟 😁

[CRRAB @rb_research]

✨ Keynote Announcement! We are so excited to announce our Day 2 Keynote Speaker for the 2026 Symposium: Mitch Hendry. Mitch is a retinoblastoma survivor, long time CRRAB member, and now certified genetic counsellor.
#retinoblastoma #rb #2026RBSymposium #keynotespeaker

[CRRAB @rb_research]

As we get closer to the 2026 RB Research Symposium, we wanted to take a look back at some amazing moments from Child Life activities over the years. 💙

Child Life programming will be available for in person attendees in both Toronto and Vancouver this year!

[CRRAB @rb_research]

Child life programming will be available at the 2026 Retinoblastoma Research Symposium 💙

Activities will be running Saturday and Sunday for in-person attendees in Toronto and Vancouver.

🔗 Learn more and register at the link in our bio. #retinoblastoma #rb #symposium

[CRRAB @rb_research]

March is Child Life Month 💙

This month, we recognize and thank the dedicated child life professionals who help make healthcare more compassionate, supportive, and centered around the needs of children and families.

#ChildLifeMonth #CLS #Retinoblastoma #RB

[CRRAB @rb_research]

✨ Keynote Announcement!
We’re excited to share that Dr. Jesse Berry will take the stage as a keynote speaker at the 2026 RB Symposium on Saturday, April 18th.
➡️ Swipe to learn more about Dr. Berry! #retinoblastoma #rb #2026RBSymposium #keynote

[CRRAB @rb_research]

⏳ The countdown is on! We are officially 6 weeks away from the 2026 Retinoblastoma Research Symposium. 🎉
Today, we’re proud to announce our 2026 theme: "Evolving Care: Evidence-Based Care with Patient Impact."
#Retinoblastoma #RB #ResearchSymposium #2026RBSymposium #CRRAB

[CRRAB @rb_research]

Registration is now open for the One Retinoblastoma World Conference. 🎉 It is taking place in San Antonio, Texas, from September 12th to September 14th 2026. Find more details here: https://t.co/Qsicfnlxow #retinoblastoma #rb #conference #patientengagement #eyecancer

[CRRAB @rb_research]

Today is Rare Disease Day — a day dedicated to raising awareness for patients, families, and caregivers affected by rare diseases.
We stand with everyone impacted by retinoblastoma and other rare conditions.
#RareDiseaseDay #Retinoblastoma #RareButNotAlone #RBStrong

[CRRAB @rb_research]

February is a key month for cancer awareness. Today, on International Childhood Cancer Day, we advocate for awareness , action, and hope. 💛 #ICCD #retinoblastoma #RB #EyeCancer #PatientEngagement #CRRAB

[CRRAB @rb_research]

Read through the slides for anecdotes from patient partners participating in the FACE-Q Study! #RB #EyeCancer #retinoblastoma #patientengagement

[CRRAB @rb_research]

Last November, PhD Candidate Farheen Khan from the Dimaras Lab attended the Canadian Outcomes Matter conference. This work would not have been possible without the valuable input from all the patient advocates listed in the top left photo #RB #EyeCancer #retinoblastoma

[CRRAB @rb_research]

Registration is now open for the 2026 Retinoblastoma Research Symposium. Click the link in our bio to sign up! 🔗 We can't wait to see you there 😁 🔬 #retinoblastoma #RB #EyeCancer #PatientEngagement #CRRAB

[CRRAB @rb_research]

The January Cup of Tea is one week away! It will feature Dhruv Kohli, RB Survivor, and Rob Bremner, Scientist, who will discuss a new paper on promising new retinoblastoma therapies. #retinoblastoma #PatientEngagement #CRRABCupOfTea

[CRRAB @rb_research]

Join us on January 20th at 8:00pm for our first 2026 "Cup of Tea" Journal Club. The presenters will be discussing the paper "preclinical studies reveal MLN4924 is a promising new retinoblastoma therapy" https://t.co/MuE81uFOKy #retinoblastoma #PatientEngagement #CRRABCupOfTea

[CRRAB @rb_research]

Save the data for our next Cup of Tea on January 20th, 2026 at 8:00pm! More details to come. 🫖 📖 🔬 #retinoblastoma #PatientEngagement #CRRABCupOfTea