letter

[Testosterone @badassceo]

Hello Elon San @elonmusk

Could you please take a look at the attached tweet and help them spread the word? Basically, there son has a genetic disorder called junctional epidermolysis bullosa. Since it’s such a rare disease, they can’t find any valid treatment in Japan and their son’s life is in great danger.

If you take a look at the statistics of the attached tweet, you can see that almost all the Japanese Twitter users has seen it, but we want this tweet to go world wide to raise the probability of finding the right treatment.

Please please help them.

Below is the translation of the attached tweet.

———————————————

Today's video is a video of a request to all of you.
Last year we found out that our first son, born to us, has a genetic disorder called junctional epidermolysis bullosa.

Epidermolysis Bullosa is a disease that has many different forms, ranging in severity from mild to fatal.
My son's form is the most severe form.

We also spoke to people who are considered epidermolysis bullosa specialists,
Frankly speaking, the number of patients with epidermolysis bullosa is very small, and depending on the literature, death often occurs within the first year of life, so we are not sure if this is the case.

Even the specialists answered that they do not know what they can do other than symptomatic treatment.

There are currently no active treatments or clinical trials in Japan, and there is almost no chance of success.
We contacted overseas research institutes and medical institutions.

We also tried a treatment that was probably the first of its kind in Japan, but it was not effective.

However, if we give up now, our son will surely die in the not-so-distant future.
However, we do not have the option to just do nothing and face that day.
We have no choice but to do nothing and face that day.

That's why I made this video to ask for your help.

We would like you to translate this video and our message into various languages and spread it on various social networking sites.

Also, if you are a researcher who has seen these posts, or have information to share, please contact us at

[email protected]

[Yuto Nagatomo | 長友佑都 @YutoNagatomo5]

W杯の応援ありがとうございました！
感謝の気持ちとして著書「メンタルモンスターになる」にサインを入れて10名の方にプレゼントしたいと思います。
応募方法は、このツイートをフォロー＆リツイートしてください。
受付は12/20まで。
当選者には僕から(or マネジャーアカウント)直接DMします！

[letter @re_letter]

／
#ピッコマからの贈り物 ❤️
メリークリスマス🎅🎄
＼

今日のプレゼントは「時短アイテム」が当たったよ🎁✨

ピッコマで”毎日抽選中”❗
️#マンガ を読むだけで当たる☃️🌟
#Amazonギフトカードチャレンジ 挑戦中💰🤩💰
https://t.co/dLUuNuWpZ1

[はじめしゃちょー(hajime) @hajimesyacho]

#ヒカルしゃちょーの5000万円プレゼント 🎁🌴

ヒカル(@kinnpatuhikaru)とはじめしゃちょーのアカウントをフォロー&この投稿をRTで【総額5,000万円分】MacBook Proを300名様にプレゼント！💻

締切は7/28(木)23:59まで！
詳細はYouTube動画とツイートのリプライを見てね！
https://t.co/hhjP1ermEJ