I was thrilled to join @AKF_Advocacy on Capitol Hill yesterday to advocate for the New Era of Preventing End-Stage Kidney Disease Act (H.R. 1518), the Living Donor Protection Act (H.R. 4583/S.1552) & Living Donor FMLA Protection Act (H.R. 4582) on behalf of the #kidneycommunity!
Rare Kidney Disease Advocacy Day. Tomorrow will be talking to our congress and senate representatives about the Living Kidney Donor Act (HR4583/S1552 and HR4582) & The New Era of Preventing End-Stage Kidney Disease Act (HR 1518) @AmericanKidneyFund @AKF_Advocacy#rarekidneydisease
In person for the first time in four years, more than 120 Voices for Kidney Health advocates descended upon the U.S. Capitol today to help inspire more legislative action on behalf of the 37 million Americans with kidney disease. #MyKidneyVoice
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Add your voice and let's urge Congress to increase funds to raise awareness and drive research, eliminate discrimination against living organ donors, and improve access to home dialysis. #MyKidneyVoice https://t.co/q1k6N86fsg
ADTKD is my rare kidney disease. But more people probably have it than known. Through genetic testing, one can find out if they have inherited ADTKD. A cure in the works - don't give up hope! #UMOD#ADTKD@nephcure#rarekidneydisease https://t.co/feEKs8S2FM