@TheWife88 I’m so sorry. The heart break is real. Brain cancer is an ass hole. We lost our son 1 month and 2 days ago to childhood brain cancer. It’s not fair. 💔 no one deserves this.
@RachelEnsignWSJ@KFILE@nytimes My husband just lost his job. And our insurance. My son has ATRT like Francesca did. We have a load of medical bills. Despite doing a st Judes trial. Since we’re not at at Judes they only pay for the medicine. Not anything else. We have 18k so far in hospital bills. R
@AmandaHaddock This is so true! My son has ATRT he went through the same treatment as “x” well “x” has little to no side effects. Except issues eating.. my son can’t walk, talk, or sit up, also not eating. Both boys diagnosed at the same age. Both 3y and 1m. 🥴
@AmandaHaddock Thank you. unfortunately childhood cancer is way under researched. And even more is his form of cancer. We did the SJ trial alsertib. There is very few treatment plans for ATRT. I believe there is only 1 more option he can do if he relapse. Because he has had radiation already.