Rebecca Randel, MPH, BCPA

#publichealthnerd with heart. #socialjustice ally. live with multiple chronic conditions. animal lover. hikes in nature. music. spiritual. aquarius. NO LISTS.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@AnitaSummers57 @Sass_Ass_Sin @LauraRiggaro I hear you. Just so you know, H1/H2 blockers aren't supplements. They're standard meds for MCAS. Slippery elm is actually more of a MCAS trigger than meds because it has a lot of salicylates in it. Do you have an immunologist? And do you have health insurance?

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@KarasMemories It's great that you're able to access Xolair. I'm sorry you're dealing with so many health issues, including leukemia. I hope your friends and family are rallying around you to provide a lot of support. 🙏✨

[Rebecca Randel, MPH, BCPA @rebeccarandel]

I live with #asthma, #migraines, & #MastCellActivationSyndrome.

Those #chronicillnesses combine to make me #chemicallysensitive. The #Xolair (omalizumab) I get every 3 wks helps reduce my chemical sensitivity a little, thankfully.

I used to wear paint fume masks 24/7 in public.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@AnitaSummers57 I hear you. I started having symptoms of fibromyalgia in my mid- to late 20s, got Dx of fibro at 43. Have had MCAS Sx since childhood, + allergies, asthma & endometriosis. Some experts link mast cell issues to fibro:
https://t.co/EPofPapxCV

[Rebecca Randel, MPH, BCPA @rebeccarandel]

Question for folks with #MultipleChronicConditions:

At what age did you realize that you are #medicallycomplex?

[Rebecca Randel, MPH, BCPA @rebeccarandel]

Have you developed hives or chronic hives since you got infected with COVID?

If so, how long have you had hives?

PSA: Chronic urticaria (hives) is a mast cell disorder. Chronic urticaria can be triggered by a variety of things.

[Dr. Jennifer A Hawkins #SupportUkraine #eduFFB @jenhawk6248]

Hakeem Jeffries BRINGS THE HOUSE DOWN in must-see speech of the year https://t.co/ieSXrTXGj8 via @YouTube

[Ana Chambel @abrileira_]

@rebeccarandel Being patient and believing that it's not in her/his head, that she/he is sick, despite the countless times they try to dissuade her/his otherwise. 😉💜

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@DiaryofaSickGrl Thanks for sharing that Candace.🙏✨ What advice would you give to someone who is newly coming to terms with being medically complex?

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@KellyannM210 Thanks for sharing that Kellyann.🙏✨ What advice would you give to someone who is newly coming to terms with being medically complex?

[Kellyann Murphy @KellyannM210]

@rebeccarandel 14, I had a double lung collapse from them. Died and came back and realized I am not like the others.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@hoobathan Thanks for sharing that jVH.🙏✨ What advice would you give to someone who is newly coming to terms with being medically complex?

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@DJAmeliaPrice Thanks for sharing that Amelia.🙏✨ What advice would you give to someone who is newly coming to terms with being medically complex?

[Amelia @DJAmeliaPrice]

@rebeccarandel It took me until 36 when my chronic illnesses combined made me housebound. Before then I just struggled endlessly without knowing why.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@AnnieTehworst Ruth, have you connected with a Long Covid clinic in your state or online? If you had ME/CFS pre-Covid, then Covid might've made the ME/CFS symptoms worse.

[Ruth Langmores Salty Attitude @AnnieTehworst]

@rebeccarandel Not until the last two years. I'm almost 63. I've always been tired as an adult, after a near-fatal case of mono in 1978. I just thought I was tired because I was a single mom of a very difficult child. But post-COVID, I'm tired in a way I couldn't have imagined possible.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@AnnieTehworst Ruth, I'm sorry your journey has been so challenging.😞 Do you connect with other spoonies online?

[Ruth Langmores Salty Attitude @AnnieTehworst]

@rebeccarandel I must have always had CFS, but when I was in my 20s, CFS was believed to be psychosomatic, so I never considered I might have it. I thought it wasn't "real." Plus, I have severe ADHD. I have trouble just showering twice a week and eating 2X a day. It's not living, just existing.

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@AnnieTehworst Thanks for sharing that Ruth.🙏✨ Yes, sometimes it's difficult to imagine how life would be if we weren't medically complex. What advice would you give to someone who is newly coming to terms with being medically complex?

[Ruth Langmores Salty Attitude @AnnieTehworst]

@rebeccarandel And I now realize that I was always this "brand" of tired, unable to figure out how other people get so much done when I have trouble getting through each day with just the basic activities of living. I've always wondered, "Where do they get the energy?"

[Rebecca Randel, MPH, BCPA @rebeccarandel]

@Legend0fScarlet Thanks for sharing that Bri.🙏✨ I totally understand, it takes time to process the increasing complexity. What advice would you give to someone who is newly coming to terms with being medically complex?