@NeuesFuechsle@FionaPWME@GrandeBettina@sunsopeningband Do you happen to have a source? I think a lot of us would love to see the details. Rehab has been tailored to ME/CFS patients for years and still included harmful therapies. Some still include what is effectively Graded Exercise Therapy (GET) when the claim is they do not.
@GrachStephanie@MEActNet Open Evidence AI which is sponsored by Mayo Clinic is giving dangerous treatment info promoting GET and CBT for ME/CFS. Something needs to be done ASAP!
@sunsopeningband Is Long COVID with PEM/PENE being recognized as COVID induced ME/CFS or is it still being considered a "new" condition? It seems like some patients are making that connection but are researchers? Shouldn't there be ME/CFS research experts on all these teams?