Rebecca Ebnet-Desens (Mavencamp)

Mother to child and cats, a few beef cows, and coworker with amazing people at the Anoka County Historical Society. The present is the past of the future!

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Had a bad body day yesterday thanks to temp drop and rain. Dragged myself to the museum for a few hours then collapsed in a useless heap at home. What is love? Mr. D serving up the crockpot beef, mashed taters…and picking out the Lima beans from the veggie mix :)

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

After three months of wearing leg braces and losing 10 pounds as a result, one needs to experiment with walking to the end of the road and back “au naturel” as it were.

Yep. Still need leg braces.

#findinglimits #muscle #oops #EhlersDanlosSyndrome #flexibility

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Realization: I’m not unreliable, my health is. #changefocus #wordsmatter

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Mr. D just created the title of my next book. Who would read, “There’s a mouse head on the porch (and other uncommon lessons I learned from the barn cats)”?

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

A little innocent scrolling on social media at the end of a vacation weekend ends in tears—my #eds specialist Dr. Brad Tinkle suffered a stroke. I cry for his family and for all the hopes I had pinned on my upcoming appointment with him.

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I’m sitting with the fear I feel about a long holiday weekend with no access to my chiropractor. If my bones move out I’ll have no choice but to use the ER for pain management. Friday to Wednesday. The countdown starts now. #eds #EhlersDanlosSyndrome #instability #cci

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

There is WATER outside! Like, actual fell-from-the-sky water! Enough to get Walter the cat wet and cause drips on the BBQ handle. #grateful

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

“You look great for someone with as many health challenges as you have.”
Sigh. So if I was healthy, I’d look like shit? #goodintentions

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

“I’m busy” is easy to say in conversation, but I’m discovering it causes me stress to focus on the multitude of jobs on my list. Instead, I’m going to pick a “gem of the day” to use in convos. What am I thrilled about that is DONE?

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Just heard that the roller rink of my youth is closing. I spent many, many, many hours going in circles there! I’m experiencing all the feels.

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

My happiness comes from realizing my body is a broken, disabled contraption that I live in. My spirit is my own and I can feed it the right food so it can bouy me for the rest of our journey.

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I made it into work—like the actual, physical building—today for the first time in two months. I’ll be honest, it kicked my ass. #lifewithoutthumbs #disabled #ChronicPain #EhlersDanlosSyndrome

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I’m tired of the rain making my body ache. I’ve eaten things to emotionally make myself feel better. Spoiler alert, I didn’t work. Just took a hot shower, probably a better option. #weatherspoons #rainpain #eds

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I planned 10 delivery stops today for Mr. Darcy’s Cows. Thankfully, Mr. Darcy gently suggested I had over planned for my body. We all need someone to support us when the trap door opens and we stand on the brink of being our own worst enemy. #Boundaries #EhlersDanlosSyndrome

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

#momentofhonesty The pedicure I had today caused me stress. As a person with a #hiddendisability I trusted a (well-intentioned) stranger. They moved my foot too fast and pulled my hip, rubbed my foot too hard and moved bones. The chair popped a vertebrae. Ugh. #treatmelikeim80

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Woodtick #1 found scaling the kitchen wall. Flushed him and then flushed him again, little bastard.

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I’ve been involved with our farm for five (?) years and tonight was the first time I saw a calf born. It was as sloppy, wet, and amazing as you’d imagine. #birth #mrdarcyscows #calves

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

I went for a walk today. It made me tired so I took a nap. I’m ok with this. #eds #EhlersDanlosSyndrome #chronicfatigue #ChronicPain

[Rebecca Ebnet-Desens (Mavencamp) @rmavencamp]

Fun parts of my job :)