Rob

M.E/CFS,
MCAS,
Hypothyroidism,
Advocate For Research And Treatment.
Male Mental Health Exponent.
Music Lover & Performer.
My Musings On A Life Of Illness.

[Rob @Robtweetsitall]

Hey #ChronicallyAwesomeCAFS people ! Recently joined Twitter again to connect and be involved with the #pwme #cfsme community and meet some people and make new friends who also have CFS . I'm mostly bed and housebound so it would be nice to meet other suffers 😊

[Rob @Robtweetsitall]

A difficult week.

You get good days. Sometimes, good enough to feel a shred of normality. Then, you get a stark reminder of how fragile and vulnerable you are. That's chronic illness.

#MECFS #pwME #chronicillness

[Rob @Robtweetsitall]

@LilianHorn_ I've seen it, lol. We aren't used to it but when the first ray appears, we've got the flip flops on and the BBQs out :p

[Rob @Robtweetsitall]

@freethinkerdang Yas ❤️

[Rob @Robtweetsitall]

@LilianHorn_ As an Irishman, I understand, lol.

[Rob @Robtweetsitall]

@alicelalachie @hellolanawild Glad you had fun, Alice ! You look lovely ❤️

[Rob @Robtweetsitall]

@Dan_Wyke Absolutely, Dan. The mistreatment that many of us with complex medical conditions face at the hands of the medical profession is such an insidious and profound problem. Lives are irrevocably changed for the worse with bad advice and arrogant attitudes. It must be held to account.

[Rob @Robtweetsitall]

@alicelalachie Thanks, Alice ! It was sorely needed. I felt somewhat normal today in comparison. My body shuts down when it doesn't get a good rest. If I could send you some good rest, I would ❤️. It's after midnight and I'm dying of hiccups 🤣 always something 💕

[Rob @Robtweetsitall]

I had my first night of decent sleep in a while and it makes such a difference for me. Not getting a good sleep really exacerbates my illness, I feel like a zombie. Maybe I can finally enjoy a bit of the good weather here in Ireland 😊

#chronicillness #MECFS #pwME

[Rob @Robtweetsitall]

@houseboundhuman As a chronically ill man, I feel this immensely. Gender stereotypes being what they are. A man holds a lot of his self worth in being able to provide . Not being able to work shifts that paradigm and you're left wondering what value you have and who would want you. Hugs ❤️

[Rob @Robtweetsitall]

@EllieLouuu Hellooo 😊. I love your glasses 💕

[Rob @Robtweetsitall]

@alicelalachie Thanks, Alice ❤️ I hope you're doing ok Hugs.

[Rob @Robtweetsitall]

Lack of sleep + Stress = A bad day.

Sleep insufficiency really exacerbates my illness and symptoms. I feel so drained and worn out along with stiffness and aches. All I can do is rest and lay here. Hugs everyone ❤️

#pwME #MECFS #venting #chronicillness

[Rob @Robtweetsitall]

@nocateg0ry Thanks, Hun. Hugs ❤️

[Rob @Robtweetsitall]

@dragonfly5474 Biggest hugs, Hun. ❤️

[Rob @Robtweetsitall]

@WWE A dark day in the wrestling world. Scott left a lasting mark on the industry and showed you that life can knock you down, but it can't keep you down, this is a tough one. Rest is peace, Scott. Bad times don't last... But bad guys do. #RIPScottHall

[Rob @Robtweetsitall]

@welcomewords The isolation and loneliness you experience with chronic illness can be so understated. You lose so much ability to engage in social relations. It can leave you feeling very lost and unheard. I'm glad social media can help bridge that gap and allow us to not feel as alone.

[Rob @Robtweetsitall]

@cfs_jo Always a nerve-wracking process . It can be difficult explaining ebbs and flows of chronic illness on these forms . It's not always black and white and getting that across is very frustrating. It's a wonderful system for those who need it, but to be reliant on it, is stressful.

[Rob @Robtweetsitall]

Feel very rough this morning, can't move much , feel sick. I wanted to do things today, but now I'm laying in bed wondering if I will be able to. All this because I missed my energy supplement last night, maybe? I don't know. Frustrating is an understatement with #MECFS #pwme

[Rob @Robtweetsitall]

@SallyClareR Such a wonderful feeling getting outside when you spend so long housebound. I can't wait until the good weather comes back, so I can sit outside more. The sun makes me feel better ❤️