RockingtheChronicLife

Rocking the Chronic Life every day Lyme, chronic illness, autoimmune issues, and food allergies.

Please check out my blog at

[RockingtheChronicLife @RockingtheC]

@molsjames I got Lyme in NY in February during a deep freeze.

[RockingtheChronicLife @RockingtheC]

I don’t love AI for a lot of things, but coming up with recipes that are MCAS-friendly that also avoid all my allergens might be my favorite thing right now.
The Oatmeal/Applesauce muffins taste great, were easy to make, and I’m not reacting to them.

[RockingtheChronicLife @RockingtheC]

Just another Saturday night in the ER. My latest on Substack about the realities of chronic illness and MCAS.

https://t.co/p49Zeme2eW

[Robby Starbuck @robbystarbuck]

I want everyone to stop and ask what interest Google has in releasing mosquitoes. They’re a tech company. Not an environmental group. Not a non-profit. Not a government. A tech company. Just like Bill Gates, I don’t want them anywhere near our wildlife or nature. CC: @LeeMZeldin

[RockingtheChronicLife @RockingtheC]

When getting kissed by the dog and food allergies collide.

My latest on Substack.

https://t.co/cwoSJYDG6w

[ThePOTSPostman @ThePOTSPostman]

Something a coworker said to me once still sticks with me.

“If you stopped focusing on your symptoms so much, they probably wouldn’t affect you as much.”

I don’t think healthy people realize how insulting it feels to have your illness reduced to a mindset problem.

People with chronic illness aren’t choosing this life.
Ignoring symptoms wont magically make us feel better.
This isn’t something a “mind over matter” attitude can fix.

[RockingtheChronicLife @RockingtheC]

Have you ever wished that you could just tell someone to their face, "Hey, you stink?"

Today's Substack asks that question while exploring the prevalence of fragrance in society.

https://t.co/tm9mPdlhqd

[RockingtheChronicLife @RockingtheC]

It's May 1st—time to kick off both Fibromyalgia Awareness Month and Lyme Disease Awareness Month.

I need to get myself a purple and lime-striped hat. Or socks. A scarf?

[RockingtheChronicLife @RockingtheC]

If you have food allergies and have ever had a panic attack in the grocery store, asking yourself, "What am I going to eat?" Today's Substack article is for you.

https://t.co/fMDgzmBa15

[RockingtheChronicLife @RockingtheC]

@tracybeanz Nope.

[RockingtheChronicLife @RockingtheC]

Food allergen recall: https://t.co/mLvdjNlNNw

[RockingtheChronicLife @RockingtheC]

What the hell are they doing to cheese?

My latest on Substack.

https://t.co/al2wRklVbJ

[RockingtheChronicLife @RockingtheC]

I added a second Substack channel. "The Foggy Bookworm" focuses on the mental aspects of chronic illness and autoimmunes. Hello, brain fog!

Please check it out.
https://t.co/kGqHcDM7mg

[RockingtheChronicLife @RockingtheC]

My latest Substack just posted!

What do Julia Child and Alton Brown have to do with my having a miserable Easter?

Check it out!

https://t.co/UybkvIIuoP

[RockingtheChronicLife @RockingtheC]

@tracybeanz When I first moved to Jacksonville, I remember the realtor telling me, "if you don't like the weather, wait 10 minutes."

[RockingtheChronicLife @RockingtheC]

@InformedNJNurse It doesn't help that the CDC only recognizes Lyme if you have 3 bands present. I couldn't get short-term disability while on FMLA because I only tested positive at the time for 1 band. They said my doctor failed to prove I had the disease she said I had.

[RockingtheChronicLife @RockingtheC]

Spent Easter isolated from the family after I started wheezing when the Clams Oreganata were brought out.

MCAS sucks. Trying very hard to get my family to understand that I really can't be in a room with wheat anymore. It's extremely frustrating.

[RockingtheChronicLife @RockingtheC]

@CaryKelly11 Good to know. I've been trying to find Italian sausage that doesn't contain "natural flavors."

[RockingtheChronicLife @RockingtheC]

@HardcoreItalian Sauce. Always sauce.

[RockingtheChronicLife @RockingtheC]

My latest on Substack: Holidays and social events can be extremely frustrating when you have food allergies and MCAS.

https://t.co/Ls164QhiGu