Honored to have had the opportunity to contribute feedback to this invaluable resource!!
Navigating complex medical care? Check out Kristen Allen’s work. #RareCompassionProgram
We were thrilled when the author reached out to members of our Rare Compassion Program so that their experience with complex medical care could help shape this book. It's become the most downloaded resource on our RARE Portal community! Click for more!
https://t.co/HtpPRNk68o
I share this because I hear the conversation surrounding working from home. While most are for it, I know some are not convinced. While you and your company’s leaders have these discussions, I hope you will consider an employee like me and a situation like mine.
We are excited to announce that we are now accepting applications for the 2023 RARE Compassion Program - a chance for you to educate the next generation of healthcare providers about rare and undiagnosed diseases! Click to submit your application today!
https://t.co/3ih5ma4W9C
⚠️MASK WEARING ADVISORY— New York City health department issues rec to #WearAMask “at all times when in an indoor public settings” including stores, schools, childcare facilities, elevators, public transit, public shared spaces, & even *crowded outdoor settings*! #BringBackMasks
"I’m newly 18, I’m immunocompromised, and I am angry. I am angry at the government. I am angry with select family members. I am angry with friends. And, truthfully, I’m furious with the world."
Really proud of this. Read here: https://t.co/v85bifrE27
People without symptoms of Covid-19 should take three antigen tests, each spaced 48 hours apart, to reduce the risk of false negatives, according to the FDA. People with symptoms should take two tests, 48 hours apart, the agency said. https://t.co/Pc9PKcMJeM
Anyone who refuses to wear a mask is helping propagate this virus. If you don't wear a mask, you are contributing to the airborne viral load. Help end this pandemic by wearing a mask.
“The culture of medicine discourages doctors like me from crying, sleeping or making mistakes,” writes @SeemaJilani. “Worse, we can even be punished for seeking mental health care.” https://t.co/YdWr2XiTRO
"The doctors we are often losing are the very ones we need: the gentle ones... the thoughtful, meticulous ones who call you on their day off." @nytimes
Why So Many Doctors Treat Their Mental Health in Secret https://t.co/c7UUQcESA9 "
We are still accepting applications to join our #RARECompassionProgram.If you're a med student or know a med student who would be interested in the opportunity to work with #rarediease patients & their families, click the link for details https://t.co/b7yTFp3Tdw. #CareAboutRare
As someone who found out on Friday that they need surgery this week, this is terrifying. This is happening in many places and “elective” surgeries cover a very broad range of urgency. Please #MaskUp, #GetVaccinatedNow, and #SocialDistance. Your actions impact everyone.
“If getting another shot in my arm keeps yours from being broken, I will gladly do it for the rest of my life,”~@thelauracoates
The most authentic, genuine, powerful, take I’ve ever seen. This world needs more of that .
Thank you @thelauracoates ❤️
Most people who are "so done with caring about COVID" honestly never had to fear their life because of COVID.
So what they are saying is actually "I'm so done caring about YOU."
COVID is a lot easier for people who don't have to fear their lives and we don't talk about that.