@warrendevgrp@ELonMuskNewssX Your wording is so irrelevant and hurtful in so many ways - what if you know someone who is deaf/ blind ? Would you still use these words to describe someone ?
@taylorswift13 My son Zachy has Usher syndrome Type 1F - Born deaf and progressively losing his vision - Make his dream come true as a true swifty!!
https://t.co/oVorVLdkrJ
@ZachRoot07 congrats on Arkansas - My son’s name is also Zachary Root - he goes by Zachy - I need to get him your jersey - check him out https://t.co/ZRYpjfe4EW
Researchers have designed a “mini gene” that could be developed into a gene therapy for Usher Syndrome type IF, a severe syndrome that causes blindness and deafness https://t.co/eUP7BJR9NJ
@FrenchStewart Hey French - You feeling better these days - hopefully you’ve fully recovered - let me know if you can join the #usher1fcerealchallenge !!
Ryan Strome from The New York Rangers accepted the #usher1fcerealchallenge - LET'S GO RANGERS ! Who's picking up a 🥄 next and taking this amazing challenge to raise money and awareness for Usher syndrome Type 1F ?? @NYRangers@Gatorade@NHL @Usher1F
Thank you to @ricekrispies ! It is truly unreal watching all the videos and seeing all the people that have learned about Usher 1F! If you haven’t done the challenge - now is the time - please - let’s keep this going #usher1fcerealchallenge