disability reporting fellow @statnews
work at @radiolab, @sciam, @slate, @newscientist
hard of hearing, so i will ask you to repeat yourself
she/they
🏳️⚧️
My latest @statnews: Advances in gene therapy could eventually "cure" many forms of congenital deafness. But many deaf people don't want this. They worry that this treatment will deplete their communities and make them an "endangered species."
https://t.co/vfW0lyoTqs
EXCLUSIVE: Eli Lilly gave compassionate use access to retatrutide, their unapproved powerful obesity drug, to a 79-year-old man in April. The application was arranged by a top doctor at NIH, and cleared by the FDA.
https://t.co/bakw09t4D3
I'd like to draw your attention to my fantastic @statnews colleague @elaineywchen. She led the way our obesity drug coverage, is a host on our podcast, and writes our biotech newsletter most days.
Today has two big examples of the value she delivers STAT readers - one having to do with Eli Lilly's $6.3 billion purchase of Centessa, and the other is really trippy.
We've spent all year tracking how the Trump administration has eviscerated the decades-old compact between scientific research and the federal government. We're dropping a new series today @statnews, taking stock of what's been lost.
You can find first story in the reply
People are increasingly leaning on chatbots for emotional support, pushing mental health apps to build their own therapy bots. What are their plans and how are they approaching this challenge amidst regulatory and technological limits?
https://t.co/ryy6hyeKRA
“The folks at SAMHSA [need to] understand that the urgency is now,” said one SAMHSA grantee. “These families cannot put their crises on hold.”
https://t.co/ll0iW0BALq
Goodbye, SAMHSA?
After the Trump administration's latest layoffs at the federal agency for mental health and addiction treatment, the agency is in shambles.
On the sacking of SAMHSA and what it means for the country's behavioral health, w/ my colleague Lev Facher (link below)
Mothers regularly shoulder the "blame" for having a child with autism. So when autistic moms watched Trump insist — despite little scientific evidence — that Tylenol use during pregnancy causes autism, it felt like a return to a dark era. #disability#Autism
Link below
Trump, Kennedy say the data show that Tylenol use during pregnancy causes autism.
It doesn't, but the PACER files show that the researcher whose data is fueling their conclusions was paid $150,000 to testify in a case against Tylenol.
Link below for my latest @statnews
BREAKING: The CDC is temporarily ending remote work. The decision leaves scores of employees in the lurch, even forcing people with disabilities with high-support needs to come into the office.
https://t.co/inzYkf5t8G
BREAKING: The CDC is temporarily ending remote work. The decision leaves scores of employees in the lurch, even forcing people with disabilities with high-support needs to come into the office.
https://t.co/inzYkf5t8G
Coming soon from World's Beyond Number: HINT! a 4-episode series GM'd by Erika Ishii debuting Sept 2 on the podcast feed. Grab your candlestick and meet us in the library!
Between now and then, stay tuned for a public fireside chat wrapping up the first book of WWW!
The DOJ has issued “nearly 20 subpoenas” to clinics that provide gender-affirming care per DOJ's Chad Mizelle, who spoke at an all-day FTC workshop focused how the federal government might continue its crusade against trans health care. I watched: https://t.co/NuMTVrIxbk
Trump's tax bill includes massive cuts to Medicaid. This could be disastrous for disabled folks.
I spoke with someone from ADAPT, a group that's fought for disability rights since the 80s, about why she's putting her body on the line to fight this bill.
https://t.co/s2iKQQYzHN
The man at the center of DOGE's health care cuts has quite the history: Top execs from a startup he founded feel he ripped them off & lower-level workers say their jobs were to cut services from vulnerable patients.
https://t.co/dN69ov07WM via @statnews