@H0LYCR0W Yes. It took asking for help to get there. It took acknowledging that I had issues so needed to ask for help, but I got there. It can get better, but it's not an easy path and there will be set backs. It's a marathon, not a sprint.
@GetYourBellyOut You go to bed tired, you wake up tired, and you spend all day in a haze unable to fully focus. You don't realise how drained you are unless you get lucky enough to get a break from it.
@befspriv How things look and appear isn't always an accurate messure of 'good' friendship. Being there for each other is, for me at least, the most important thing, however that may look. Being online to reply and support is important too ❤️
@befspriv My BFF and I from the outside don't look like good friends. We hardly talk or see each other. Forget to message back etc. But we have been there for each other for most our lives, and pick things back up right where we left them each time we see each other.
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@adamfare1996 Having an HCP who listens and understands is massively validating and super helpful. When I switched hospitals for my gastro care my new consultant recognised that I was Austitc without me saying anything. My care put my needs in the driving seat and that keeps happening.
@bibicosplays It honestly makes me mad how people make assumptions about others just from how they look.
The UK is getting awful due to political discrimination about work helping disabled people live more meaningful lives.... 🙄
@bibicosplays There are so many chronic conditions which aren't visible. I often wear baggy clothes, so you'll never see that my back isn't straight unless you know how to really look and see it. I have other conditions that have no noticible outward signs apart from "oh you've lost weight"
@nightingales2_2@Shrink_at_Large When I was off sick with a bad back, I had to keep getting one reissued every 2 weeks. Every 2 weeks I had to put in a request to extend my fit note. God the admin!
@Autistic_Lauren Pressure. It's a pressure on my head that needs an escape, and that escape is not something that I can have much control over. If I get lucky and notice it building, then I can possibly direct it out in a more safe way. Sometimes this isn't possible, and it explodes out of me.
@QueerlyAutistic I'm well aware of the privilege I have as someone who's in a supportive well paid role who also now has a chronic condition.
Yes I know I have hard days, but I know my job is safe so I can pay to have a roof over my head.