Children's Cystic Fibrosis Fund Worthing & Chi

We're a charity based in Worthing & Chichester. Providing support to children up to 18yrs old with Cystic Fibrosis & the immediate family living in Sussex.

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

#yelfie day! Let's see them people. Please wear yellow and support the #cftrust & #cfcommunity today 💛💛💛

Post your pics here, we would love to see them. Xxx

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

It is imperative that our CFers keep #active. It goes a long way to helping #clearthelungs #keepngfit and #gettingstrong .

Here we have an example of what we can fund for our #sussex #cffamilies

#cysticfibrosis #strongcfwarriors

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Wow, wow, wow! What a day yesterday was!

From the bottom of our hearts we would like to say a HUGE thank you to every single one of you for making the day a roaring success!

We don't have the words to do you all the honour you deserve but please know we are truly grateful.

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Wowee! A lovely donation from #AngelasAvon for our raffle and treats for the goody bags! Thank you so much Angela.

For your Avon needs I can highly recommend Angela.

#Avon #makeup #bathproducts #perfume #localbusiness #buylocal #localcommunity #CysticFibrosis #ccffwc

[Elizabeth @LizzieTice]

Love a #sweettombola, looking forward to this event
#charity #cysticfibrosis

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Safe to say that Archie was really chuffed to receive his 1st donation this week with a special note for him on his envelope. 💜💜💜

#1stdonation #donations #fundraising #df508 #cysticfibrosis #cfsiblings #cystersandfibros #sussex #sussexfamilies

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Hoping you'll all have a go with our sweet tombola on Saturday. Some great jars and fab star prize up for grabs! Another great bit courtesy of my aunty & nan. Thank you both so much. Xxx

#sweets #tombola #sweettombola #sweettooth #ccffwc #cysticfibrosis

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Hopefully you'll all be guessing the weight of this stunning cake on Saturday...

Courtesy of my amazing aunty & nan. Thank you so much guys. Xxx

#guesstheweightofthecake #cake #icing #ccffwc #cysticfibrosis #familyfunday #fundraising #hedgeyourbets

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

So the big day is nearly here! And to give you a small taste of what's to come...
A bouncy castle!
Courtesy of @Backyardbouncersllc who have been incredibly patient and accommodating! We highly recommend!

#backyardbouncersllc #funday #fundraiser #ccffwc #cysticfibrosis

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

#cysticfibrosis #propertymaintenance #handyman #littlehampton #chichester #worthing #helpingfamilies #ccffwc #localbusiness #lookafterourlocalbusinesses

https://t.co/LDj0bO8Rk7

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

Today we started putting together the goody bags! Send your cards/treats this way if you would like.
So far we have @theovenmagician & @cartsofdelight
@MissBettysBeauty will be putting some vouchers in with their cards so you'll want to come along to get your voucher 😁

[Green Planet @Elizabeth_Ruler]

The fountains save the equivalent of 155,000 single-use plastic bottles every year.

#FFF #1o5C #XR #GlobalWarming #climatechange #wildlife #nature #wwf #GreenNewDeal #SaveThePlanet #AnimalRights #Schools4Climate #environment #plasticpollution

[Steyning Town FC ⚽ @SteyningTown]

Final game for the reserves and the long awaited trophy presentation.

Sadly the opposition could not raise a team so we have 22 man in house game involving all the lads who helped the ressies win the league in style.

Well done Pepp,Barlow & all the players.

Up the Barrowmen .

[Elizabeth @LizzieTice]

Note to self - must remember this 👇 #anxiety #selfcare

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

#facepainting #sharefarandwide #familyfunday #music #tombola #sweets #hotfood #bikiniorange #events #goringconservativeclub #bettysbeauty #fosterflooring #cashprize #raffle #cakes #manicures #crafts #drinks #fundraising #bouncycastle NHS Organ Donation #ccffwc #cysticfibrosis

[Adur & Worthing Councils @adurandworthing]

RESULT - HEENE (Worthing BC)

Christine Allen (LD) - 163
Joshy High (IND) - 147
Joseph Pearce (GREEN) - 277
Gavin Poole (CON) - 758
Helen Silman (LAB) - 866

LAB gain

Turnout - 34.7%

#localelections2019

[Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic]

https://t.co/odyHn9AkqB
#sharefarandwide #ccffwc #family #cysticfibrosis #fundraising #slushpuppy #facepainting #funday #bouncycastle #childrenscysticfibrosisfundworthingandchichester #candyfloss #sweets #food #drink #entertainment

[AFXM.COM @AFXM]

@s_cystic DR MARTIN BURKE AND GRAD STUDENTS
HAVE DISCOVERED A NEW USE FOR AN EXISTING DRUG [AMPHOTERICIN B] IN
THE TREATMENT OF CYSTIC FIBROSIS.
https://t.co/Qvhhp2fKJB

[Liz Twist MP @LizTwistMP]

Good to see rare diseases getting the attention they deserve in the morning papers. My constituent Barbara McGovern and her son Archie showing again the injustice those with #PKU face.

[AFXM.COM @AFXM]

Children's Cystic Fibrosis Fund Worthing & Chi @s_cystic