Please sign the petition urging the FDA to consider all possible options to make a treatment available for CMT-SORD as quickly as possible. The organizations are trying to get 3,300 signatures - one for every SORD patient!! https://t.co/8KNlOU4pZF
The CMT-SORD community urgently needs effective treatment. Sign the petition today to urge FDA to listen to the voices of patients and caregivers and act swiftly to review the potential first-ever treatment for SORD Deficiency. #MakeitHappenforCMTSORD https://t.co/UtuAl6oaXV