Sage

Applied Physics PhD working in industry. Views my own. Fiber arts, cooking, baking. #NEISVoid #LongCovid she/her 🐘❤️ @[email protected]

[Sage @sagetoko]

I had an anniversary last week that I wanted to talk about and acknowledge here but was struggling with the reality of. Two years ago, in the first week of March 2020, I was the sickest I’ve ever been, in what turned out to be the acute infection that started my #LongCovid. 🧵

[Sage @sagetoko]

@stickmancrips Premade smoothies?

[Plague Poems @PlaguePoems]

I saw a news outlet say
“It’s time to stock up
on tissues,
bingeable TV options
and Covid-19 tests,”
and while it’s worthwhile
to stock up on those things
more than tissues and
bingeable TV options
the thing to stock up on
is decent quality masks.

[Erin Lee 🌻 @ErinMariLee]

When he described #PEM as the “annihilation of possibility” it stopped me in my tracks. I took a moment to weep. Finally someone sees. This is the symptom that causes me the most suffering but it is so hard to describe. Thank you, @edyong209 for writing this explainer.

[Sage @sagetoko]

@PanickedFoodie 0.3mg (0.2 am, 0.1 pm) daily, ended my ten-month constant migraine, took about a month and a half.

[Sage @sagetoko]

@dizzydizzydazed Sometimes instead of that you go into anaphylactic shock and nearly die, like my father did in front of me and my mother (it happened so fast the didn’t get us out of the room) in the cardiac ICU after coming out of getting stents mid-heart attack.

[Sage @sagetoko]

@SpaceWhaleRider 🐘❤️❤️❤️

[Sage @sagetoko]

@OneSickVet Y, millennial

[Sage @sagetoko]

@desertdracula @pamelarbishop Sure thing! Happy to talk more about my experiences here or in DMs if more depth would help you.

[Sage @sagetoko]

@MaeExhausted It sounds like that might be related to the symptoms you’re experiencing. I’m sorry it’s such a tough balance.

[Sage @sagetoko]

@MaeExhausted What’s your blood pressure? Sounds low to me.

[Sage @sagetoko]

@SpaceWhaleRider Go to the Huntington! The LA Botanical Gardens! Get takeout from Din Tai Fung!

[Sage @sagetoko]

@makeupartist524 @emilyesfraser @sarahwoolard Oh hey I think I saw that exact post through a mutual friend today. I told the mutual friend that the poster should look into LC/ME. It’s just … never ending, and at the same time how do they still not know? I don’t quite blame individuals but the systems are so complicit.

[Sage @sagetoko]

@poetpedagogue It topped out over 700 at my house in the Santa Cruz Mountains during the CZU fire. (The fire was about 4mi away from us.)

[Sage @sagetoko]

@OneSickVet Gotta catch ‘em all!

[Sage @sagetoko]

@lia_pas Sure! You know how to get it to me

[Dr. Lucky Tran @luckytran]

The CDC has finally published guidance for cleaning indoor air and is recommending wearing masks in schools.

Why wait until after the end of the public health emergency? The government always knew about the science needed to save lives. But they didn't want to pay for it.

[Sage @sagetoko]

@the_tweedy I talk to my massage therapist about whether an appointment is for maintenance or for a specific thing gone actively wrong. It’s such helpful language!

[Sage @sagetoko]

@ahandvanish Fludrocortisone for POTS!

[Sage @sagetoko]

@niais Congratulations, for both, and solidarity hugs on offer for the weird feelings. 🐘❤️