@hopefullizzy Hi Lizzy, from myself and my daughter. We are ok ish. The sun's been shining. Daughter has had a full bed rest day, (has M.E and several disautonomic conditions). Having a cuppa and a small piece of cake. Love to you x
For my beautiful friend Evette who died yesterday of very #SevereME after years of unimaginable suffering.
How many more young people have to die before this horrific disease is recognised/researched/treated appropriately?🕯️🕯️🕯️🕯️🕯️
#ME#MyalgicE#MEAwarenessHour@memorialME
It would be so so helpful if you could retweet my May botanical illustration & mental health workshop in my previous tweet if you have a few seconds. I've been unable to work since December due to a breakdown (not remotely proud of this) and I'm trying to get back on my feet so if you could RT it would help enormously. I so love teaching people how to draw & how it changes brain biochemistry resulting in better mental health 🌿
@RachelReevesMP, how exactly is cutting support for millions, that would otherwise help them into work and education, NOT writing off a generation, but supporting them is? Without this money I lose treatment, transport, full-time care and ALL income #WelfareNotWarfare
Dear @UKLabour MPs, experts telling you the facts of a situation is not fear mongering, whether you like what the facts say about you and yours or not. They've looked into this at far greater lengths and work directly with people impacted. It's not a lie because you don't like it
Hey, maybe @UKLabour has secretly discovered the art of necromancy, because I don't see how else they expect dead people to get back into work #WelfareNotWarfare
@UKLabour, your copy-paste response always includes the little snippet like 'We're commited to championing the rights and views of disabled people'. How exactly will pushing us out of work and into poverty and health decline with our families do that? #WelfareNotWarfare
@UKLabour, what's the point in me paying hundreds for treatments you won't fund so I can improve my health just a little, if that means I'll lose the benefit that allows me to afford it and slip even further back into my disease than before? #WelfareNotWarfare
PIP is NOT preventing people working. It's preventing people dying. @UKLabour knows this. Question why, then, that they act like they don't even know what they're changing.
🧵Just to be clear, @UKLabour either doesn't understand the benefits they're cutting, or they do, and they're trying to take the general public for fools #WelfareNotWarfare
Many CAN'T work without it. Many, like me, wouldn't be able to afford treatment or round-the-clock care without it. Accessible public transport is a joke, so travel without it becomes very very tricky and very expensive.
@UKLabour, how do you propose that cutting the benefits that help disabled people improve their health and get into work... Will help them into work? #WelfareNotWarfare
Please sign the open letter if you haven't already, this is incredibly important. My treatment, wellbeing and stable health rely on me being able to afford private care and medication. My friend's lives depend on benefits.
-Mab
https://t.co/XdnvHU7wOF
@KSchnickelfritz At 5:55pm every evening this week we have had such a loud chorus of bird for 10min straight. We love the app Merlin to help identify the different bird songs. It's a lovely sound x🐦🦉🐦
16/16: We desperately need hope for a different future. None of us want to be here. It's not fun, it's not a holiday, it's not a cheeky week off to lay in bed. It's a living hell. It's losing yourself. I want myself back.
Please.
#FundThePlan
1/16🧵Dear @wesstreeting and @AshleyDalton_MP (and @ThereForME_UK ),my name is Mab. I'm taking over my Mum's twitter for this thread as, although I've made my video, I don't think I've yet made my point. I had to shorten my video, as I find speech tricky. Here is the full script:
15/16: Without funding, this feels like nothing but a performative farce. An insult to what this experience is, what all of us have faced. Funding the delivery plan might mean no other child has to face this. No adult. No parent. It's a chance to reverse decades of neglect.