SARA CASATI

#deliberativeBioethics #scientificCitizenships #biobankingTogether #participatoryScience

[BBMRI-ERIC @BBMRIERIC]

When #biobanking with children, we recognize the child as an active participant. #EBW22Rome encourages all of us to rethink the issues of assent and consent, inviting multidimensional action to create a system based on transparency, inclusion, participation.
👪
#paediatrics

[BBMRI-ERIC @BBMRIERIC]

Day 2 of #EBW22Rome. Our interactive training is ongoing! Join us in raising awareness and delivering citizen science to new generations of citizens and researchers.
You can also access resources and good practices in our ELSI Knowledge Base: https://t.co/UwTEdfplGa
#BBMRI_ELSI

[BBMRI-ERIC @BBMRIERIC]

Join us this 13-14 October in Rome for the #EBW22 Roadshow to focus on #paediatrics & #ELSI challenges in #biobanking with children.

Share good practice & success stories in this interactive workshop.

Programme https://t.co/SvkbhVJGwL & registration: https://t.co/3QwofyRSfZ

[BBMRI-ERIC @BBMRIERIC]

Anna Codina (Paediatric Biobank for Research, Sant Joan de Déu, Barcelona, Spain) will speak at the Good Practices Session of the #EBW22 Roadshow meeting in Rome on 13-14 October.

Programme and registration:
https://t.co/wGOGu29J6I
#Biobanking #Paediatrics @ESBBnews @BBMRIERIC

[BBMRI-ERIC @BBMRIERIC]

We welcome MARCO TARTAGLIA as speaker at the success stories session of the #EBW22 Roadshow in Rome on Oct. 13.
His talk: “Innovative genomic approaches with undiagnosed paediatric patients“

Programme & registration:
https://t.co/wGOGu1S7I8
#biobanking #paediatrics @ESBBnews

[BBMRI-ERIC @BBMRIERIC]

LORENZA PUTIGNANI (IRCCS Bambino Gesù Children’s Hospital, Rome, Italy) will speak at the Overview Session of the #EBW22 Roadshow in Rome - 13-14 October!

Scientific programme and registration: https://t.co/wGOGu29J6I

#Children #Biobanking @ESBBnews @BBMRIERIC

[BBMRI-ERIC @BBMRIERIC]

Save the date now for the second #EBW22 Roadshow stop in Rome on 13-14 October!

We will focus on the many aspects of #paediatrics in biobanking.

Organized together with our partner @ESBBnews !

Mark your calendars & read more: https://t.co/Aqc9FycVHl

#biobanking #BBMRI_ELSI

[Ari Asmi @asmi_ari]

Really happy to participate in the @MasterEMMRI graduation event as an alumni. Second and third classes finish now and the 4th is ongoing. Research Infrastructures have a great need for quality leadership and management. @unimib

[BBMRI-ERIC @BBMRIERIC]

PhD student or postdoc interested in a life science career?

Join our virtual workshop about career paths, skills we use and issues we face running one of Europe's largest #ResearchInfrastructures.

Tues, Feb 1, 13-17 CET

👉https://t.co/5Ji2HgMxtN

#biobanking #PhDemployment

[SARA CASATI @saracasati]

Vogliamo una donna Presidente della Repubblica #DonnaPresidenteRepubblica

[BBMRI-ERIC @BBMRIERIC]

Today is the last day of #EBW21 but the best is yet to come! Don't miss the beloved Ethics Cafe at 4 pm CET.
Join us and share your opinion on a variety of ethics-related topics in biobanking. Live session!

#BBMRI_ELSI #ELSIrocks @keanbirch

[BBMRI-ERIC @BBMRIERIC]

Time for #Biobanking with children at #EBW21
Now at 10:00.
Children are not adults: they are a unique population.
Our challenge is to include their views, experience & participation within a new deal of promoting research with & for them!
@BiobankWeek @ESBBnews

[Anna Clareborn @clareborn]

I really like @saracasati's call for scientific citizenship for children @BiobankWeek. Just like #BiobankSweden stressed in the Patient engagement session, a far-reaching culture change is what is needed, and #citizenscience is an important building block in that process. #EBW21

[BBMRI-ERIC @BBMRIERIC]

Reminder - Wed. 17/03, 14:00-15:30CET
#BBMRI_ELSI #webinar

Biobanking with Children

@saracasati & Bridget Ellul focus on #ethical issues specific to #biobanking from children & on the regulatory background regarding #datasharing & #childrensrights
More https://t.co/jajboNnfO4

[BBMRI-ERIC @BBMRIERIC]

Raising awareness, engaging minors in #research #biobanking
We need your opinion until 14/10 https://t.co/Xe0tuXLQiY
Which tools do you use to increase awareness & engagement? Have you produced comics, videos? What do you promote? Do you organise biobank tours, meeting schools?

[BBMRI-ERIC @BBMRIERIC]

DEADLINE EXTENSION - Oct 14th!

Great response so far from biobankers, patient advocates, health care professionals and more. But we still want to hear from you by Oct 14th!

Sign up for info and/or share your practices: https://t.co/uBUXSTG758 #pediatricbiobanking #BBMRI_ELSI

[BBMRI-ERIC @BBMRIERIC]

In your experience, who is primarily responsible for proposing to the minor to participate in research biobanking? Who assesses the child’s capacity (to understand, to assent)? A professional trained in working with children? Share your practices, join in: https://t.co/uBUXSTG758

[Research Ethics @Research_Ethics]

Reshaping the review of consent so we might improve participant choice, Hugh Davies, https://t.co/ILzNXfamtG

[BBMRI-ERIC @BBMRIERIC]

How do you involve the children in your biobanking for research? What tools do you use to make biobanking understandable to children?

Join our initiative & share your practices:
https://t.co/ASuHQLsirg

#minor #involvement #empowerment #researchparticipant #pediatricbiobanking

[BBMRI-ERIC @BBMRIERIC]

We’re calling on #pediatric & #raredisease communities to engage in a network with our #StakeholderForum and @CYBiobank tackling pediatric biobanking and its ethical, legal & societal challenges.
From 1-30 Sept:

https://t.co/uBUXSTG758

#pediatricbiobanking #patientengagement