This was 7 years ago today My interview with Kay Burley on Sky News, November 2019.
Watching this interview again, I realise just how many of the concerns I was raising back then are still very much with us today.
We talked about autistic children and adults being admitted to hospital, sometimes for years, families not being listened to and parents living with the constant worry of what will happen to their loved ones when they are no longer around.
We also discussed concerns around Do Not Resuscitate (DNR) decisions within the NHS and the importance of listening to families.
At the time, Paula McGowan, one of our charity ambassadors, was in the early stages of her campaign for Oliver McGowan training, following the heartbreaking loss of her son Oliver.
Paula was determined to make a difference, and I was proud to support her.
As a mam of two autistic sons, Patrick and Angelo, these aren't just issues I talk about on television. They are part of my everyday life.
Angelo is now 33, and I still ask myself that same question.
Who will look after Angelo when Sean and I are no longer around?
Will people understand him?
Will they recognise when something is wrong?
Will they listen to those who know him best?
Seven years on, we have seen some changes, including the introduction of Oliver McGowan training, but there is still so much more to do.
I have been speaking up for autistic children, adults and their families since 1997. I've never changed my views on the importance of dignity, respect, proper care and listening to families.
It saddens me that we are still having so many of the same conversations.
2019 to 2026. Different year, same worries for so many families.
I will continue speaking up because these issues matter, and families deserve to be heard.
#SkyNews
#Autism
#OliverMcGowan #AnnaKennedyOnline #AutismAcceptance #NHS
#Carers
Our Family Fun Day at Princes Park was brilliant on Wednesday! 🤩
Come and join in the fun over the next two weeks:
🐮 13 Aug - Rice Lane City Farm
🌳 20 Aug - Garston Park
1-3pm – everything is free to enjoy – including the food! 🍛 🥪 🍏
I’ll die on this hill, #EYFS should run from 0-7. Play based learning should run for the whole of KS1.
#continuousprovision should be in every classroom all the way to KS2.
The curriculum and education system needs a massive overhaul for ALL children, not just #SEND.
Say what you like about Rachel Reeves but the truth is she’s got to fix this country with what the tories left , essentially some poundland sellotape & chip wrappers
Never forget the tories broke Britain & hid the carnage with chaos 👇
#Budget2024
“The system is broken… Our children are traumatised by school”
@CarrieGrant1, broadcaster and National Autistic Society ambassador, speaks to #Newsnight about the National Audit Office report on children with special needs
maternity pay is crap, childcare costs are crippling, childbirth is hellish and pre/post natal care is on its knees, it costs a million pounds to rent a 1 bed shed, butter is a fiver and it’s exhausting just being alive
As school begins in England, periodic reminder that schools which choose to reward 100% attendance without equally rewarding disabled children who cannot achieve this for disability related reasons may well be breaching the Equality Act and the Human Rights Act
A heart-breaking read, showing the devastation 14 years of Tory Government failure has had on Liverpool.
1 in 3 children living in poverty, life expectancy falling, homelessness rising and foodbanks unable to meet the explosion in demand.
This is the human cost of austerity.
two lads who helped me dad today by david lloyds gym kirkby when he had a stroke and crashed thank you very much you have probably saved his life by acting quick and helping him , wish i got ye details , if ye on here get in touch coz it’s much appreciated by our family
I’ve added some actual FACTS to this SHOCKING response from Prime Minister @RishiSunak to the crisis facing our schools. If like me you’ve had enough of this Government’s absolute bull**** RT this widely
#PMQs
We’ve got millions living in poverty, kids going hungry, hospitals crumbling whilst thousands die on NHS waiting lists and schools collapsing. The plan is absolutely NOT WORKING @RishiSunak!
Wow. In Sept 2020, Covid testing backlogs were so dire that people were driving hundreds of miles for tests. But @MattHancock personally arranged for a test to be couriered to Jacob Rees-Mogg for one of his kids. And then sent straight to a lab.
A corrupt little man to the core.
During #ChildrensMentalHealthWeek it is important to recognise that Behaviour Policies which include isolation or public humiliation, including names on rainclouds, are abusive and exacerbate or cause mental health vulnerability in schools.
BREAKING
House of Lords has REJECTED Gov's #PublicOrderBill plan to give police powers to shut down protests on the off chance they become disruptive later
HUGE VICTORY
Shell just recorded £32 billion in profit.
3,000 people in the UK die every year because they can't afford to heat their homes.
There’s nothing pragmatic about letting greed run rampant while the poorest freeze to death.
Energy is a public good. It should be in public hands.
IT'S HAPPENING
Someone told me this week that a Tory friend of his had been out canvassing in a classic London Tory stronghold.
He said he'd never had as many doors slammed in his face as he did this week.
Keep on slamming 🚪
“We are the working class. We are back, we are demanding change and we are going to win for our people.”
- @RMTunion Mick Lynch addresses 40,000 striking workers today
#EnoughIsEnough