Satvinder Kaur

Passion to bring the change in system, ALS care and Support India founder, Science/IT professional by education while majorly medical by experience.

[Satvinder Kaur @satvsonia]

We are ALS Care and Support group India of 400+ members. On behalf of each life suffering with ALS in India, we must take action now. Been trying to reach health ministry, no hearing till date.
#IndiaActForALS #ACTforALS @PMOIndia @MoHFW_INDIA
https://t.co/zqbNzFM4GN

[Satvinder Kaur @satvsonia]

@elonmusk @neuralink Amazing!

[Irfan Sorathiya @IrfanS198]

@JPNadda @PMOIndia @HelthMinistry https://t.co/WkDPBNzLF3 hello respected health minister and PM. I want to know about why MND/ALS is not under 63 Rere disease. All the world is fighting for ALS/MND. Can you clarify this why MND and ALS are not under 63 rare diseases.

[ALS Care & Support India @alscasindia]

#als #ALSCareAndSupport #endALS #rarediseases #motorneuronedisease #neurology #HomeICU #IAMALS #pmoindia #nitiaayog #nirmalasitharaman #ktr #ysjagan #ministryofhealth #ministry @JaisonVineeth
@Prasannashirol @satvsonia @SukhSk @NirmalSurya1 @HarshinPublic @VijayaTejasvi

[Satvinder Kaur @satvsonia]

@alscasindia Policymakers @MoHFW_INDIA , we all request that your attention towards this disease is highly needed.

[Satvinder Kaur @satvsonia]

@alscasindia Policymakers @MoHFW_INDIA , we all request that your attention towards this disease is highly needed.

[ALS Care & Support India @alscasindia]

On 3rd December, the World Disability Day, we shine a spotlight on the challenges faced by individuals battling (ALS), a Motor Neuron Disease (MND). A progressive neuro-degenerative illness, it leads to 100% immobility and the even snatches away ability to communicate.

[Vijaya Bharati @VijayaTejasvi]

@KTRoffice @ECISVEEP @TelanganaCMO @narendramodi
My father he is suffering from Amyotrophic lateral sclerosis, he is on ventilator support at home, but he is mentally active. He wants to cast his vote online. Could you help!
#vote #TelanganaElections2023 #TelanganaElections

[Satvinder Kaur @satvsonia]

@alscasindia Spirit of CALS and PALS..they are real heroes!! Such moments makes the life worthy to live!

[ALS Care & Support India @alscasindia]

ALS , a rare neurological deadly disorder, has finally got some traction on ALS Awareness Day observed on 21st June 2023. It got covered by India’s leading newspaper TIMES OF INDIA.
special thanks to @NirmalSurya1 @DrRKDhamija ,Dr Gourie Devi

https://t.co/91aDemuCUK

[Satvinder Kaur @satvsonia]

@alscasindia If you know any person with these symptoms, please suggest them to get checked from Neurologist. And if you know any ALS family in India, connect them to care and support network of ALSCAS by submitting the google form.https://t.co/GdkfpdG1nl

[Satvinder Kaur @satvsonia]

@alscasindia However, Early diagnosis, intervention, comprehensive and committed care and support and learning from others who already crossed the journey can significantly enhance the quality of life for those affected.

[Satvinder Kaur @satvsonia]

@alscasindia A person with ALS slowly lose the power of mobility and speech, the ability to swallow or chew and ultimately breathe! That is the time patient needs feeding tube and permanent ventilator support to survive.

[Satvinder Kaur @satvsonia]

@alscasindia It was great that Sukhvinder Kaur and Vishisht Bhatia represented ALS Care & Support foundation and helped to raise relevant points in this important connect.

[Satvinder Kaur @satvsonia]

@alscasindia Thanks to organizers, policymakers for your support and efforts to move forward in this path for the benefit for rare disease patients in India.

[Satvinder Kaur @satvsonia]

@alscasindia We all together need to make noise, raise our voices to get heard. 👍

[ALS Care & Support India @alscasindia]

Let us stay focused on our mission, remain steadfast in the pursuit of excellence, and always doing the right thing. Together, we can achieve anything by combining faith and vision, hard work, determination, and dedication.

#ALScasindia #alsindia #IamALS #ALSawareness

[Sandra Abrevaya @sabrevaya]

Today I put our groceries on our credit card because we have nothing left in savings or checking. 24-7 caregiving bankrupts families across the country. I am not sharing this for help, we will find a way through it. I just want the world to understand what ALS is.
#EndALS

[Satvinder Kaur @satvsonia]

@alscasindia @TheJohnAbraham We are so much grateful to you John for accepting this request which will be great help. Your support will be big boost to create ALS awareness in India and also to get their voices heard for getting attention from policymakers and scientists. Heartfelt thanks. 🤝🫶

[Satvinder Kaur @satvsonia]

@alscasindia @TheJohnAbraham We are so much grateful to you John for accepting this request. Your support will be big boost to create ALS awareness in India and also to get their voices heard for getting attention from policymakers and scientists. Heartfelt thanks. 🤝🫶

[ALS Care & Support India @alscasindia]

We welcome more people to join our cause and become a part of our volunteer team. If you have a passion for helping others and making a positive difference, we would love to have you on board with us.
To learn more, please scan the QR code or visit the link in our bio. Thank you!