Save Sight Now

Charitable organization funding medical research to cure childhood blindness caused by Usher Syndrome Type 1B. Partners with the Foundation Fighting Blindness

[Save Sight Now @savesightnow]

Thank you @LezlaGoodenTV for sharing our story on @KPIXtv . Very Grateful for the opportunity to talk about Save Sight Now and the work we are doing to cure childhood blindness associated with #UsherSyndrome https://t.co/xxGLpEB9nF

[Save Sight Now @savesightnow]

Word is spreading! Funding the successful creation of an #USH1B NHP provides a vital platform for testing therapies and demonstrates this rare disease community is organized, and here to support #UsherSyndrome researchers! Thanks @OHSUNews
https://t.co/e7ZI4eScNB

[Save Sight Now @savesightnow]

Design is a creative problem solving process that can be applied to any challenge: Learn how how Industrial Designers are helping to 'Save Sight Now' https://t.co/eWAcwOBLVr
#DesignThinking #Nonprofit #Ushersyndrome

[Save Sight Now @savesightnow]

Who's ready to have fun and support a great cause?✋Our virtual #fundraiser Gift of Vision is December 1st. Register Here 👉 https://t.co/PQUUMu0btJ
#UsherSyndrome

[Save Sight Now @savesightnow]

With help from @FightBlindness and @savesightnoweu we now have the ability to collect tax exempt donations from the #UK #Switzerland and #Canada - Visit https://t.co/XQNx4OTFr7 to learn more and donate

[Save Sight Now @savesightnow]

With help from two #USH1B Swiss families, we launched Save Sight Now Europe. Growing our reach internationally gets us one step closer to funding and accelerating treatments for #Ushersyndrome as well as connects and strengthens our USH1B community. #parentled #fundingresearch

[Save Sight Now @savesightnow]

@JanssenGlobal Thank you Janssen! We are so grateful for your support! See you tomorrow night!

[J&J Innovative Medicine @JNJInnovMed]

Janssen is a proud sponsor of @savesightnow’s Annual Gift of Vision virtual event, an event dedicated to funding research to halt vision loss due to Usher syndrome type 1B, an ultra-rare inherited retinal diseases. Learn more and purchase tickets here:
https://t.co/b9EGkEpxHD

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/hvJafLsLM4

[Save Sight Now @savesightnow]

Join Us! Thursday, December 2nd, 5pm PST for our annual virtual fundraiser - Gift of Vision. Help us halt childhood blindness related to #UsherSyndrome. All proceeds benefit Save Sight Now and the @fightblindness #WorldSightDay

Tickets on sale now: https://t.co/PQUUMu0btJ

[Save Sight Now @savesightnow]

On Usher Syndrome Awareness Day (18th) help us raise awareness for our underserved community and patient led organizations like Save Sight Now, who help fund vision saving research for those who have already lost their hearing and balance due to Usher type1b. #Ushersyndrome

[Save Sight Now @savesightnow]

Just posted a photo @ Blue Plate https://t.co/T8onTwIv3Y

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/Ro1XcVSZPs

[Save Sight Now @savesightnow]

Just posted a photo @ San Francisco, California https://t.co/4nA4EgYFcz

[Save Sight Now @savesightnow]

Just posted a video @ UCSF Benioff Children's Hospitals https://t.co/cVrN1ADdyy

[Save Sight Now @savesightnow]

Just posted a video @ UCSF Benioff Children's Hospitals https://t.co/02rgcnZQ7K

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/cRykSLpi9e

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/O2QjIGG8Zr

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/QvgML5CLXw

[Save Sight Now @savesightnow]

Just posted a photo @ San Rafael, California https://t.co/neRG2toWvj