Some people are delusional about disability and believe every disabled person can live a full and rich life if only they'd be given the right accommodations. This is magical thinking - it is simply not true.
@xvxdxncx Sie sagt sogar, dass sie eig. im Bett bleiben wollte, aber in nem "rebellischen Akt" doch gegangen und dem Adrenalin dankbar ist. Kennen wir alle, aber vermittelt halt echt, dass man sich durch die Krankheit durchpushen könnte, was halt in die schwerbetroffenheit führen kann 🥲
When talking about treatments for Long Covid and ME, we need to primarily talk about the very severe. They might make up only a small % but their suffering is 10-1000x more horrific than the bulk who are mild-mod. affected. We need treatments to help them survive, primarily.
In the last weeks i lost 2 friends due to severe ME. Years of enduring horrible symptoms, just for the hope to get better one day. But for them that day did never come.
To this day its just a matter of luck if you improve or get worse. This needs to change.
#MEAwarenessDay
@C_Scheibenbogen Was für Signalwiekung? Sendet höchstens das Signal, dass ME-Betroffene immer noch nicht relevant genug sind um angemessene Versorgung und Zugang zu evidenzbasierten Medikamenten zu erhalten lol