Joyce Soh

SLE/Sjogrens - looking for pro bono board members for lupus foundation in Australia

[Joyce Soh @scmay]

@michelegoldman just wondering if we could have a chat about Asthma Australia coming together from a federated model?

[Joyce Soh @scmay]

Setting up a lupus foundation in Australia and would like to invite pro bono board members #Lupus #sle

Please forward this to anyone who may be interested

[Joyce Soh @scmay]

@dotnetcnf just wondering if there will be any recording for the upcoming dotnetconf, I won't be awake at 2am

[Joyce Soh @scmay]

@DempsterBrendan @trickytaipei can't see this one

[Joyce Soh @scmay]

@trickytaipei @KidAutumnt do not have option to Follow

[Strictly 4 My X’ers @Lizzs_Lockeroom]

No two cases are alike... just because you know someone with Lupus doesn’t mean it affects everyone the same way it affects them. Educate yourself before assuming...... 💜 #LupusAwarenessMonth

[Joyce Soh @scmay]

@Lupusreference Currently have been working out the last 15years before diagnosis, so still keeping up. But I can feel a lot more aches after exercise, and can understand how others who may not have exercise prior to lupus can feel put off. I try to incorporate 30 mins of weights twice a week.

[Joyce Soh @scmay]

What are your thoughts regarding the feasibility of an ecoLodge opening up a sustainable food based experience that would connect guests to their surroundings and other local businesses at Mt Nelson. Any thoughts?
#tasmania #sustainablefood #ecotravel #travel #tourism

[#tRi @trighana]

Lupus is short for Systemic Lupus Erythematosus. It is a chronic autoimmune condition that causes the body to mistakenly attack healthy organs such as the heart, kidneys, and skin.
#LupusAwarenessMonth #KnowLupus #LupusSupport #LivingWithAPriceTag #PurpleForLupus.

[More Than Lupus @LupusMore]

No, #lupus doesn't "go away." There is no smoothie, tincture, or diet that will "cure it."

#LAM24 #LupusAwarenessMonth #lupus #SLE #chronicillness #nocure #disease #autoimmune #condition

[Joyce Soh @scmay]

@RepQnts Dm sent

[Joyce Soh @scmay]

Hey @Qantas it is really unfair as a customer when I have input my name correctly into your system and it appears wrong on the booking. Clearly it is a sync issue with QFF so you should fix the error.

How can my name be suddenly input into the middle name field?

[Joyce Soh @scmay]

@QantasAirwaysAA Have dm

[Joyce Soh @scmay]

@Officeworks does the preauthorised charge of $3 gets refunded because I only printed $0.10

[Donald Thomas, MD @lupuscyclopedia]

🔥Another reason to monitor patient hydroxychloroquine (HCQ) drug levels (#SLE, #lupus, #Sjogrens):
https://t.co/FlIVxQFMWt

🧬 This study showed that metabolism and resulting whole blood HCQ levels varied widely based on genetic polymorphisms.

🩸This makes a lot of sense. I have been measuring levels on all my patients regularly for 5-6 years. This helps explain why I have some 300# patients who only need 200 mg qd, while I have some 120# patients who require 400 mg qd to reach trough [HCQ] of 1000 - 1200 ng/mL (my recommended target based upon reducing flares, CV events, and retinopathy per studies by M Petri and N Costedoat-Chalumeau).

💊 Also, per Tett SE et al, European Journal of Pharmacology 183(3): 1035, 1990, the absorption of HCQ varies between 25% and 75%.

⚖️ It makes no sense whatsoever to dose HCQ based on body weight! (genetics and variable absorption!)

📢 I was very happy to see Dr. Arnaud ( @lupusreference) recommend following HCQ drug levels in patients in his talk on the last day of ACR Convergence 2023 in San Diego! It is slowly catching on in mainstream rheumatology.

PRACTICAL ADVICE:
👉Start with 5 mg/kg/d HCQ
👉6 weeks later, check a trough HCQ whole blood level (6 weeks' time from personal communication with Dr. Costedoat-Chalumeau)
👉 Ensure patient adherence before adjusting dose (in addition to discussing with the patient, I have my assistant call the pharmacy to ensure med was refilled)
👉 Increase or decrease the dose, aiming for 1000 - 1200 ng/mL
👉 Check the level again in 4 weeks and repeat (4 week time from personal communication with Dr. Costedoat-Chalumeau)
👉 Continue checking [HCQ] every time you do lupus labs to check adherence. Remember, poor adherence is a cause of flares and organ damage.

@talkmedspoke

[MariposaWarrior @LunaRivera96]

Having Brain Fog Feels Like.... #brainfog #lupus #SLE #Sjogrens #Fibromyalgia

[Joyce Soh @scmay]

@Officeworks can the cricut machine be returned, according to your 30day change of mind?

[Joyce Soh @scmay]

@Officeworks can you advise which closest store to 4073 will have this model on the floor for me to look? https://t.co/aIedb4VIRv

[Joyce Soh @scmay]

@dotnet Would you have the blog post link I’ve missed it

[Joyce Soh @scmay]

@Officeworks does your Oxley store stock any Cricut products?