SECURE-Alopecia

A global, secure, online, de-identified Personal Health Identifier-free registry to record all COVID-19+ cases in alopecia patients on immunomodulating therapy

[Dmitri Wall @DmitriWall]

Thank you to everyone who has contributed & all the groups who’ve supported awareness of the registries including @ad_secure @SecureAa
@debraireland @HealthySkin4All @ILDSDerm @SecureAa @AlopeciaUK @NAAF_org @eadv @eczemasupport @EczemaOutreach @nationaleczema @IADPO @BHNSociety

[SECURE-Alopecia @SecureAa]

We’re still recruiting patients!
Delighted for others to participate, join the group & increase what we know!

https://t.co/JnwLbdAaaA

[British Hair and Nail Society @BHNSociety]

Check out some of the outcomes seen with #COVID19 from the @SecureAa presented by @NekiMeah. #BAD2021 #BAD101
Thank you for your great work on this. @SinclairDerm @DmitriWall @irvinederm

[SECURE-Alopecia @SecureAa]

Thank you!

[British Hair and Nail Society @BHNSociety]

Check out some of the outcomes seen with #COVID19 from the @SecureAa presented by @NekiMeah. #BAD2021 #BAD101
Thank you for your great work on this. @SinclairDerm @DmitriWall @irvinederm

[Dmitri Wall @DmitriWall]

Learning from Disease Registries During a Pandemic: Moving Towards an International Federation of Patient Registries.
So thrilled to have had the opportunity to write about #patientregistries during #COVID19 with such a wonderful group of co-authors.

https://t.co/aeiJhYopQn

[SECURE-Alopecia @SecureAa]

@SkyHelpIreland Can you facilitate a DM please

[SECURE-Alopecia @SecureAa]

There's still time to register cases before we run the analysis - please share and encourage colleagues to do so!

#COVID19 #COVIDhair #Alopecia #hairloss #shedding

[SECURE-Alopecia @SecureAa]

We're about to analyse our data!
So, as we unfortunately see new waves of #COVID19 emerge, registering patients https://t.co/77fCoekobW who've had #alopecia/#hairloss before/after COVID diagnosis remains essential!
@AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm

[SECURE-AD @ad_secure]

Thanks to +500 people with #AtopicDermatitis (#eczema) who completed the SECURE-AD Patient Survey. The graph shows what happened to almost 200 of those who actually had #COVID19. If you have #AtopicDermatitis and had #COVID19, please complete our survey on https://t.co/XGgXn8HAPE

[SECURE-AD @ad_secure]

Very grateful for the physicians reporting to the #AtopicDermatitis and #COVID19 registry. Below our latest results of 241 cases. Visit https://t.co/Qfonk1ZMyr to see more. Do you have #AtopicDermatitis and had #COVID19? Ask your doctor to report your case https://t.co/JdaEDDyRJd

[SECURE-Alopecia @SecureAa]

We're about to analyse our data!
So, as we unfortunately see new waves of #COVID19 emerge, registering patients https://t.co/77fCoekobW who've had #alopecia/#hairloss before/after COVID diagnosis remains essential!
@AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm

[Esther Freeman MD PhD @DrEstherFreeman]

Tagging my #covid registry collaborators so they can help spread the word that the Covid Dermatology Registry now captures dermatologic reactions/side effects of the #CovidVaccine ! @SuzanneOlbricht @PsoProtect @rheum_covid @ad_secure @SecureAa @MishaRosenbach @juleslipoff

[Dmitri Wall @DmitriWall]

Pre-proof of our article is now available #openaccess in #ClinicsinDermatology
@NekiMeah @SinclairDerm @irvinederm @SecureAa
Shedding light on therapeutics in alopecia and their relevance to #COVID19

https://t.co/kFF8EHobhB

[SECURE-Alopecia @SecureAa]

Thanks Alan!

[Alan Irvine @irvinederm]

Reassuring data so far from the excellent SECURE IBD initiative re systemic #JAKi use in IBD in the COVID era

@ad_secure @SecureAa

[SECURE-Alopecia @SecureAa]

Delighted to say that we have now recruited 200 patients. Please keep spreading the word re all #COVID registries such as @ad_secure @PsoProtect @AADskin @rheum_covid as we work together to shed light on the impact of COVID on our patients.

[SECURE-Alopecia @SecureAa]

175 patients registered-thank you!

Please continue to spread the word & help understand #Covid19 & #alopecia #hairloss https://t.co/J7REIrub4n
@AlopeciaUK @ISHRS @HealthySkin4All @ILDSDerm @AADskin @NAAF_org
@DmitriWall @SinclairDerm @irvinederm @Lidia_Rudnicka @TostiAntonella

[SECURE-Alopecia @SecureAa]

2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151!

Thank you & please continue to spread the word!

https://t.co/5UOJoTj8Qj…

@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

[SECURE-Alopecia @SecureAa]

2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151!

Thank you & please continue to spread the word!

https://t.co/5UOJoTj8Qj…

@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

[SECURE-Alopecia @SecureAa]

SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia

Please have your doctor anonymously record if you had #hairloss & COVID

https://t.co/WTh9RXWuBL

@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm

[SECURE-AD @ad_secure]

Prof Phyllis Spuls, dermatologist/study lead SECURE-AD, draws your attention to her upcoming talk about the “Use of Biologics and Immunosuppressive Drugs during the COVID-19 Pandemic” at the @eadv congress. If you have eczema and had #COVID19 please visit https://t.co/Qfonk1ZMyr.

[Dmitri Wall @DmitriWall]

Great work by our @PsoProtect friends. Real-world #patientregistry data is always vital, but particularly during #COVID19. Please support

https://t.co/9ZFBHqlKk2

@ad_secure @SecureAa https://t.co/yHfmmMZ6wu

https://t.co/IG0hDthTcm

https://t.co/xJeLrElETe

[SECURE-Alopecia @SecureAa]

Just posted a photo https://t.co/k82W20cqkq

[Dmitri Wall @DmitriWall]

Very sorry to hear how #COVID19 has affected you. Hope you are improving

A global group of dermatologists @SecureAa are studying this. Those with COVID who had or develop hair loss can ask their doc to anonymously register their case https://t.co/CyuClSRfh5
Grateful 4 awareness

[SECURE-Alopecia @SecureAa]

SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia

Please have your doctor anonymously record if you had #hairloss & COVID

https://t.co/WTh9RXWuBL

@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm