SHEPHERD Foundation

Our mission is to revolutionize the rare cancer system: To redefine, redesign, and redevelop the patient journey so that all patients may live.
#RareIsntRare

[SHEPHERD Foundation @ShepherdFound]

WHY WEAR RARE ISN'T RARE?

Because there are 500,000 "rare cancer" diagnoses each year.

Because 380 out of 400 cancers are considered "rare"

Because ALL children's cancers are considered "rare"

#RareIsntRare

Learn more: https://t.co/IUkiUpoC3h

#RareCancer #Advocate #WearRare

[SHEPHERD Foundation @ShepherdFound]

Today at 12:30pm ET: Congressional Briefing on cancer testing technology - https://t.co/311dvT4MmU

[SHEPHERD Foundation @ShepherdFound]

Congressional Briefing Thursday - Cancer Patient Equity Act (CPEA) - https://t.co/5eEDWBBbiz

[SHEPHERD Foundation @ShepherdFound]

TOMORROW: Cancer Advocacy Conversation - https://t.co/7XbhJwXgbH

[SHEPHERD Foundation @ShepherdFound]

Join us this Thursday evening: Cancer Advocacy Conversation - https://t.co/fUeb3hyYav

[SHEPHERD Foundation @ShepherdFound]

TODAY at Noon EST - Cancer Advocacy Conversation - https://t.co/8deEr8Q7s2

[SHEPHERD Foundation @ShepherdFound]

Cancer Advocacy Conversation - https://t.co/cB1eYeBb9X

[SHEPHERD Foundation @ShepherdFound]

Watch the @CureFest Sunrise Panel on preclinical #DIPG #research and data collaboration here:

https://t.co/eDe2QfPbbQ

#RareIsntRare #RareRevolution #RareCancer #cancer

[SHEPHERD Foundation @ShepherdFound]

"I can't wait for the day that we're not terrified of losing a loved one to #cancer & instead we're rejoicing because #bipartisan groups came together & decided together that they would prioritize rare cancers, #ChildhoodCancer, ALL #RareCancers. " @LisaWardspeakup
#RareIsntRare

[House Veterans' Affairs Democrats @VetAffairsDems]

The Honoring our PACT Act recognizes toxic exposure as a cost of war.

This bipartisan bill ensures that present and future toxic-exposed veterans can get the care and benefits they've earned.

Watch @jonstewart explain why this bill is needed.

⬇️

[SHEPHERD Foundation @ShepherdFound]

WHY WEAR RARE ISN'T RARE?

Because there are 500,000 "rare cancer" diagnoses each year.

Because 380 out of 400 cancers are considered "rare"

Because ALL children's cancers are considered "rare"

#RareIsntRare

Learn more: https://t.co/IUkiUpoC3h

#RareCancer #Advocate #WearRare

[SHEPHERD Foundation @ShepherdFound]

"Creating an equitable health care system that provides equal access to potentially live-saving diagnostics is something we all should be fighting for." - @AlonzoBodden

https://t.co/J9pwRpYRV9

#RareIsntRare #RareCancer #cancer #HR5377 #HealthJustice #HealthEquity

[Dr. Catharine Young @DrCatharineY]

So grateful for the opportunity to talk with #childhoodcancertalkradio about the newly introduced #HR5377 bill that lays the groundwork for the acceleration of precision medicine for all cancer patients. #rareisntrare https://t.co/WFzHLUHomC

[SHEPHERD Foundation @ShepherdFound]

"We need to kill the cancer and not the patient." - Kara Amey, Rare Cancer Patient and Advocate

Learn more now: https://t.co/OqtRswgM6C

#RareIsntRare #RareCancer #cancer #patient #educate #advocate #legislate #MolecularDiagnostics

[SHEPHERD Foundation @ShepherdFound]

Thank you @kateesackhoff for supporting the RARE≠RARE campaign and supporting rare cancer #patients & #advocates by letting the world know that, with more than 500k diagnoses in the U.S. each year #RareIsntRare!

Help us change the narrative here:
https://t.co/1vgvqDjfMa

[Carson Leslie Foundation #cureMEdullo @carsonleslie3]

For the 2nd year in a row, the White House was illuminated in GOLD!
A special thank you to #ShepherdFoundation and #TeamBeans who are using their influence to inspire hope in our community, so that children and families all over the world will know that they are never alone.

[Tyler Robinson Foundation @trfdotorg]

Today is #RareCancerDay. Did you know all #ChildhoodCancers are considered rare cancers? Join the @ShepherdFound #RareIsntRare campaign to change the system.https://t.co/DXrOcVUmfp

[SHEPHERD Foundation @ShepherdFound]

@GKButterfield
@RepGusBilirakis
@LisaWardspeakup
@LevineChildrens
@EmCollective
@AlonzoBodden
@corrie_painter

[SHEPHERD Foundation @ShepherdFound]

Heartfelt thanks to all participants & guests of our 2nd annual #RareCancerDay Congressional Briefing. Amazing group advocating for #research #MolecularDiagnostics for #RareCancer & #cancer #patient #equity.

JOIN THE FIGHT & support HR 5377!
Learn how: https://t.co/1p1ToD9xs2

[Liz Powell, Esq., MPH - G2G Consulting Founder @G2Gconsulting]

#Cancer #Warriors #Patient #advocates - Thank you for working so hard to #makeadifference for millions! @ShepherdFound @LisaWardspeakup
If you want to help #patients support the Cancer Patient Equity Act - HR 5377! #RareCancerDay

[Liz Powell, Esq., MPH - G2G Consulting Founder @G2Gconsulting]

Disproportionate impact of #cancer on people of color must end! Equity in care needed now! Join @AlonzoBodden @weSPARKsupport @EmCollective @ACCCBuzz @Fight2CureKids @SGO_org @smashingwalnuts @ShepherdFound in supporting HR 5377 #PrecisionMedicine @TheBlackCaucus @HispanicCaucus