smashingwalnuts

Our 10-y.o. daughter had terminal brain cancer the size of a walnut. Funding #ChildhoodBrainCancer research & appropriating #GabriellaMillerKidsFirstResearchAct

[smashingwalnuts @smashingwalnuts]

https://t.co/WApVkz9SeL
Working hard everyday to ensure the that Gabriella Miller Kid First 2.0 gets signed into law & give the much needed funding to those that are #CrackingTheCure for #ChildhoodCancer. #GMKF2

[Nancy Goodman @NancyFGoodman]

Thank you, @RepDebDingell, for championing the #GiveKidsaChanceAct in tonight's town hall.

@JoeBaber1

[Joe Baber @JoeBaber1]

Aren't all cancers the same? No. According to the National Cancer Institute, "Cancer in children and young adults is different from cancer that develops later in life. Some of the unwanted side effects of cancer treatments cause more harm to children than they do to adults. This is because children’s bodies are still growing and developing, so cancer and its treatment are more likely to affect developing organs." We need funding devoted specifically to the needs of children and their delicate growing bodies. Here is an easy ask for every legislator in Congress. It's totally bipartisan, requires no additional government spending, and it does not take away from adult cancer research. Fill out this easy form and it will ask your representative and both senators to support The Give Kids A Chance Act. It has the potential to introduce more and better cancer drugs for kids and it’s desperately needed. https://t.co/nWeiJn9jm6

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

#KidsFirst supports your discoveries with more than data — check out the Cloud Credit Program to power your next project. Apply now: https://t.co/SlXlqtMeir
#NIHCommonFund

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

#KidsFirstDRC virtual office hours are now held in collaboration with #Velsera and @wearecbtn. Tomorrow, get your technical questions answered by our experts and learn more about leveraging these great resources: https://t.co/86dowvYNB2

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

A single #KidsFirst dataset offers 2,000+ participants to study #congenitaldiaphragmatic hernias. Access data Kids First Data Portal https://t.co/yTBGXpckT1 #DataForDiscovery

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

With 1,204 genomes delivered in 2024, investigators have vast critical data at their fingertips. #KidsFirstDRC #RareDiseaseResearch #Genomics #DataForGood #TogetherWeRise

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

Last year, more researchers than ever accessed the upgraded Kids First Portal, advancing discoveries globally. #KidsFirstDRC #PediatricResearch #ChildhoodCancer #RareDiseaseResearch #Genomics #TogetherWeRise

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

A decade of progress in pediatric cancer and rare disease research—this year we highlight the advancements and innovators at #KidsFirst. #10yearsforcures, #KidsFirstDRC

[Gabriella Miller Kids First Data Resource Center @kidsfirstDRC]

Patient foundations like @ccakids advocate for the Kids First Program to advance research of congenital conditions. #TogetherWeRise #KidsFirstDRC

[Joe Baber @JoeBaber1]

Happy New Year! How appropriate that the 1st day of 2025 falls on #ChildhoodCancer Awareness Wednesday! Wear a gold ribbon today and spread awareness. May 2025 be the year for cures without late term side effects! It continues to be the number cause of death by disease. We need to change this! Stop calling it rare, call and make it a "Priority."

[Joe Baber @JoeBaber1]

Give Kids a Chance, Priority Review Voucher, & Accelerating Access to Care acts were crafted to require NO Federal Funding, yet were cut by Congress. This must be first order of business! #FixIt4Kids #ChildhoodCancer can't wait! @SpeakerJohnson @johnthune @RepJeffries

[smashingwalnuts @smashingwalnuts]

@CNNSOTU @DanaBashCNN @kidsfirstDRC Gabriella would be so incredibly proud to know that her legacy will continue to make a difference for children battling cancer and other diseases thru funding research to help discover cures.

[Rep. Jennifer Wexton @RepWexton]

Gabriella was a courageous fighter and an inspiring advocate. This bill will change lives in her memory.

Thank you to all those who pushed to get this across the finish line, especially @SenTimKaine and the relentless efforts of Gabriella’s mom, Ellyn, and her family.

[smashingwalnuts @smashingwalnuts]

@RepWexton Happy to have worked with you to get our bill passed. Gabriella would be so proud!

[smashingwalnuts @smashingwalnuts]

@DSenFloor My family is incredibly happy and grateful for the passing of this bill that has our daughter’s name on it. Gabriella would be so proud to know that her legacy will continue to work towards finding cures for our children battling cancer

[smashingwalnuts @smashingwalnuts]

@samstein This is so incredibly heartbreaking to me, my family, the countless families/doctors/researchers that helped advocate for this bill, but, most importantly, for our daughter - Gabriella - that died from cancer at only 10 years old. 💔😭💔😭💔

[Joe Baber @JoeBaber1]

About 1 in 257 children and adolescents (aged 0-19) will be diagnosed with cancer before age 20,* yet the general attitude is that's "rare." It certainly is not rare, but investment in research for kids' cancers is "rare." @cac2org @HappyQuailPress @leezawilllshe @TCellALLMom

[Joe Baber @JoeBaber1]

INVEST IN RESEARCH that will reduce our dependency on chemotherapy to treat #ChildhoodCancer. Survivorship is increasing but so are those who have late effects from treatments. Today the lifespan of survivors is 57years while unaffected adults is 78 @cac2org @HappyQuailPress

[Joe Baber @JoeBaber1]

Every child should have the opportunity to grow up and be a senior citizen. You can help by supporting pending #ChildhoodCancer legislation to aid research funding. Check it out
https://t.co/1vJB2cagRR
@cac2org @HappyQuailPress @leezawilllshe @TCellALLMom @JanHalash @mary_lckc

[Joe Baber @JoeBaber1]

In the USA we see 47 daily conversations with parents about #ChildhoodCancer. It is NOT "rare!" Research to find a cure is what's rare. Make an impact. Tell your story & ask Congress to help you. https://t.co/1vJB2cagRR
@cac2org @HappyQuailPress @leezawilllshe @Ellyn_Miller1