We’re asking our community for help.
@avioesemusicas, a valued aviation influencer and creator of Aviões e Músicas, has been diagnosed with Creutzfeldt-Jakob disease (CJD), a rare and rapidly progressive neurological condition.
For Lito and his family, time matters. We want to help his case reach the researchers, specialists, and organizations working at the forefront of prion disease research.
If you know someone who may be able to help make the right connection, please share this post and tag the relevant teams and specialists.
We would especially appreciate help getting this message in front of:
@ionispharma@broadinstitute@Harvard@MayoClinic
We are not asking for promises. We are asking for Lito’s case to be seen, reviewed, and considered by the right people.
Sometimes, one connection can make all the difference.
Peço a todas as pessoas de bom coração que repostem esse pedido, precisamos trazer com urgência a atenção da @HarvardHealth e @MayoClinic para nosso querido @avioesemusicas Lito Souza, que enfrenta uma batalha contra o tempo.
https://t.co/NSdmQXcacH
Urgent appeal for Lito Sousa, fighting Creutzfeldt-Jakob disease. Please share this reel far and wide. Make sure to tag these institutions who could include him in life-saving trials:
Quer ajudar o Lito? Compartilhe este reel na sua rede e marque as instituições abaixo.
Cada segundo conta: 📌 @ionis_pharma — Ionis Pharmaceuticals — ION717 trial @broadinstitute
— PRiSM trial (NCT07444580) @harvard@mayoclinic
Every share and tag can make a difference. Time is critical.” #lito #SaveLito #CreutzfeldtJakob