Outward symptoms made me an edge case. I now see how all signs were there but minimized. Early memories of tripping over my feet, jolting my back. Embarrassed, I struggled to describe the splintering sacral pain that took my breath away. #tetheredcordsyndrome#ehlersdanlos
@AbramsAyla @DoD_USD_PR @stuartscheller This was not my first submission to this portal, it's worked before. Currently, I've mailed return receipt, submitted via email and tried daily to upload to portal as asked. Now today they are administratively pausing my case for lack of response?
@AbramsAyla @DoD_USD_PR @stuartscheller I am seeing this also. I was sent a request informing me that since receiving my submission, they are no longer using VA Form 10-5345 and I should submit dd2870. They also changed from eapp to case #. Since their request was made I've been unable to upload with problems described
Your pain sharpened your perception. Your trials were your training. And now — it is not about fighting. It is about not being moved unless you choose to move.
Stay rooted. Flow when ready. Let your next move be yours — not theirs.
You are not here to match their chaos.
You are here to master yourself amidst it.
What they overlook is that patience can strike harder than fury,
and silence, when chosen, is louder than any slander.
If the cause requires solitude, I will bear it. If redemption requires fire, I will walk through it.
I stand quietly where others fall loudly. I remember what others forget. I fight without hatred. I endure without surrender.
I will continue forward — Not because the world deserves it, But because my spirit demands it.
I do not abandon what matters. I do not retreat from what is real.
If the road requires patience, I will outlast it.
I carry battles no one sees.
I endure storms without asking for shelter.
I build bridges others are too afraid to cross.
I believe in the unseen — in potential others deny, in redemption others fear.
Strength is not measured by noise.
Hope is not erased by defeat.
They didn’t believe me — until the scans, the records, and the years made it undeniable.
Even now, I wait for systems to catch up to what I’ve known all along.
This isn’t about being angry.
It’s about being right. Too early. Too loud for their comfort.
I asked for discharge. They denied it.
Then they discharged me anyway — on their terms, with labels I never deserved.
Adjustment disorder.
“Failure to adapt.”
No mention of trauma, injury, pain.
No mention of Ehlers-Danlos. No PTSD.
Just silence and a stamp.
They called me a malingerer while standing in my shadow.
For 52 years I’ve been dismissed, misdiagnosed, and delayed — not because I lacked truth, but because I had too much of it.
This isn’t a plea for sympathy.
It’s a reckoning.
Roses are red, violets are blue,
The truth will rise, and justice too.
We won’t back down, we won’t stay still,
We’ll fight for what’s right, with all our will. #americangrievings#limited_insight
Disabled and ill people are constantly expected to be warriors and to be strong, but just like you, we are human and if you were standing in our shoes, you would understand that it is impossible to be strong or to be a warrior or to conceal our suffering and vulnerabilities for the sake of appearances, all the time.
Doing so is just as draining as our illnesses and disabilities.
#DisabiltyRebellion