Our beautiful princess has passed away after her short battle with cancer. We are devastated and our lives shattered. She lived as long and strong as she did, due to her unbelievable strength and also the amazing support from @GreatOrmondSt. She will be forever loved and missed.
@PassTheSmileOrg I’m so sorry. Time - in these instances- is no healer. I never knew Ben in person but - from what I’ve read and seen over the last few years - his life and and energy should be still be with you today-and have brightened this world beyond the short time he spent with you all x
@4myJessBrady specific funding campaign and so ultimately has a bigger impact. We do this for our shit version of cancer - rhabdomyosarcoma - but I’m sure the principle will work just the same. This might feel like too much and does need someone like Sarah to take on the charity set - but it
@4myJessBrady The charity is set up with multiple ‘Arcs’ of which my daughters Jess is one. This means that the ‘Arcs’ raise money in honour of their lost child but that all the money flows through one charity. One set of administration costs but means that your £30k becomes part of a bigger
@4myJessBrady importantly how to actually make a difference. As you say £30k requires an awful lot of effort but ultimately has a limited long term impact on achieving the aims we have for other parents. @AlicesArc driven by Sarah Wakeling has offered one solution albeit for a specific cancer.
Can’t believe it is 3 years since we lost Jess. The support we’ve had, including from @HolyRood, has been a lifeline for our family. Laying flowers at & tidying up the grave of your child is where no parent should spend their day. Every day is a tough but these days are tougher x
Alongside @Chaz0114Taylor and 10 other people connected to @HolyRood I’ll be running the @RoyalParksHalf tomorrow.
Its on behalf of @AlicesArc and memory of my amazing daughter Jessie. Not a day goes by that we don’t miss her. Pls donate if you can. https://t.co/xwjtjGn7QJ
1 MORE SLEEP 😬😳😬 😳😱😬
I am honoured (and also a BIG bit nervous now!)to be running the Royal Parks Half Marathon in memory of such a special girl. Please donate if you can. Thinking of you always Jess
https://t.co/av8DcZo2x6
@jessicasarc@AlicesArc#readyasilleverbe
1 MORE SLEEP 😬😳😬 😳😱😬
I am honoured (and also a BIG bit nervous now!)to be running the Royal Parks Half Marathon in memory of such a special girl. Please donate if you can. Thinking of you always Jess
https://t.co/av8DcZo2x6
@jessicasarc@AlicesArc#readyasilleverbe
The reason why we push every day for more investment, more support and more awareness. Nothing is being done to address this. Nothing. Regardless of what is said. Young children die everyday from a disease that, given research and funding, could be saved. @ChildhoodCancer
Meet Jess. My daughter. Ripped from our family’s life - her absence a constant and devastating impact on every single day that we live. Fantastic work and efforts from @PassTheSmileOrg to promote and raise awareness of this dreadful disease. Miss you every day Jessie 💔
Meet Jessica. She was diagnosed with #rhabdomyosarcoma and is forever 9.
"Jess has many drawings but the one I sent I keep next to me in my study which is where it’s been since the day she gave it to me."
Jessica is one of our Art in the Park artists @CentreRussells for #CCAM
ROYAL PARKS HALF - SUNDAY 9TH OCTOBER 2022. Big shout out to our 17 runners, teams from Jessica's Arc, Mollie's Arc and Ebony's Arc participating in this iconic London half marathon. Runners have been touched by Jess, Mollie and Ebony's rhabdomyosarcoma stories. #ChildhoodCancer
Really proud to be part of the Jessica’s Arc Royal Parks Half Marathon team!
In less than 4 weeks we will be running in memory of Jessica Macqueen but to raise funds for research into finding a cure for children’s cancer.
Every penny helps,thank you
https://t.co/av8DcZnuHy
Sept is Childhood Cancer awareness month. It’s also the month of Jess’ Birthday.
We should be celebrating her being 12 yrs old instead of facing the agony of another day without her. Woeful levels of research & support-all left to small charities to give families any hope. #CCAM
Extremely grateful to @atriaWatford for their support on raising crucial funds for @AlicesArc through #Jessica’s arc. A combination of excited and devastated to be opening this fantastic experience in Watford tomorrow morning. @ChildhoodCancer@childrenscancer@Observer_Owl