Today my 15 year old voice student and I cried together, as I told her she likely has to go to a doctor to get her vocal folds looked at, because she didn’t recover from her “summer flu” infection in June (it was covid)
yay it looks like my genetic testing was covered by insurance (Invitae). I know this isn't the best option for other types of EDS, but I don't currently have access to a geneticist for evaluation.
I was reading thru my diagnostic evaluation for hEDS & wow, she noted EVERYTHING
The lack of morning weather balloons launched across the western and central U.S. is having a real, tangible impact on degrading forecast quality.
We can't look at weather balloon data that doesn't exist. We can't pump nonexistent data into models. We can't rely as heavily on models that don't "know" what's happening above our heads.
Today's severe weather forecast is less certain because we don't have weather balloon data to confirm the strength of jet stream winds aloft.
This is extremely frustrating, and is the result of logistical, organizational, political and budgetary decisions.
Do you think this is unchecked box meaning I do not need to fast, or a note that I do need to fast, but they used a box instead of a regular bullet point?? 🙃
It’s for Sjögrens and Lupus blood tests
According to @AlanLevinovitz, there is no such thing as “long Covid” because it encompasses a range of conditions.
Yes, it DOES encompass a range of conditions affecting many body organs.
But that’s like saying “there is no Cancer” because it can affect many different organs.
It sucks that you have to pay $1000 out of pocket to get shit done in this healthcare system (thanks partner, you’re a life saver)
I would have had to open a credit card just for this, otherwise
The only thing she missed noting in writing was I am diagnosed for sleep apnea & I did start taking the beta blocker, but we talked about it verbally, she probably just forgot to add it in
@hannahspierMD Hi Hannah!
I was diagnosed with ME, but decided I could keep on living as I did, basically ignoring the diagnosis. It never became my "narrative".
I got worse.
Explain that.
Oh, your intellectually void theories can't?
You have no place opining on anything to do with ME LC.
Woke up with a random pain on my right side
Hopefully it goes away/is nothing… maybe I don’t get a gallbladder either lol
I have three lessons to teach today 🙃😩
I’m not nauseous, vomiting, or have a fever (I don’t think anyway, I should take my temperature but I don’t feel feverish)… the pain area lines up tho & it hasn’t gotten better or worse since I woke up so uhhh
I also think women who also didn’t have strained relationships with their mother find it very unsettling when other women do and are open about it… which is why some women are so nasty towards “friendless” women, bc they survived a loneliness that they couldn’t even fathom.
Just throwing it out there that before my dx of what's actually pretty aggressive MS, a medical professional diagnosed me as having psychosomatic symptoms and said I needed CBT. That was 2018 or 2019, so not that long ago. I have VERY obvious MS if there is such a thing