smashSMARD

SMARD1 is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy. We are on a mission for a CURE!

[smashSMARD @smashSMARD]

Please help us #savebabynash and take the #smashSMARDchallenge! @WaddleandSilvy @jalenbrunson1 @KegsnEggs @EricaWohlreich @barkinmichael @SteveNash @WriterStag @BStineman12 @BarkleySteph

https://t.co/UDcrkALRTd or https://t.co/Xs9gpn8nNG

[smashSMARD @smashSMARD]

@SikhFeminist @RiaanResearch @UMassChan Thank you for sharing, and best of luck to you all! We had a very successful fundraising campaign that allowed research to be quickly funded and had a lot of collaborators in making this happen. I really hope you will move your program to the clinic quickly!

[smashSMARD @smashSMARD]

@danno_s_h @KegsnEggs Thank you for your donation to our celebration for Nash’s 4th birthday! We can’t tell how much it is appreciated.

[Noah's Ark Children's Hospice @NoahsArkHospice]

Our Play Specialist, Vikki, has been hanging out with a real life hero, Lex. He's been chosen as the @smashSMARD charity's Superhero of the Week... and rightly so! Despite having this rare genetic condition, Lex is a smiling, laughing, joyful boy. He's a #superhero every week!

[smashSMARD @smashSMARD]

@realDonaldTrump A disease with no treatment or cures. That impact only 60 children living called SMARD. NOT SMA which has 3 available treatments. Help is needed.

[smashSMARD @smashSMARD]

@realDonaldTrump This fast tracked program needs to be focused on rare disease as well. Something that should take months has taken years to help save my son’s life. With the responsibility to raise millions of dollars myself to hope he will live. Please place this same emphasis on all diseases.

[Stevenson High School @stevensonhs]

Friday's @SHS_BHOOPS game against Mundelein at 7 p.m. is the @wciu game of the week with activities benefitting @smashSMARD. The @TheJamTVShow will also feature Patriots beginning at 6 a.m.
• Channel guide: https://t.co/2EQTuNJOg5
• Gameday info: https://t.co/jMW3GT0vwk

[smashSMARD @smashSMARD]

@KegsnEggs Nash and I say thank you to Uncle @KegsnEggs ! Every penny helps! You can also go to https://t.co/rrkS6LFjh6 for more info!

[Adam Kramer @KegsnEggs]

@smashSMARD For the next few weeks, I'll be hosting a birthday fundraiser on Facebook to help raise money for Nash and @smashSMARD. I cannot express just how much all the support means. The response already has been remarkable. https://t.co/4A4klCFYT3

[Kim Sharman @sharman_kim]

This is little Nash he is battling SMARD, a rare genetic disease. His smile and spirit are infectious, they are trying to raise awareness and funding for gene therapy. If you have a healthy child you love, please see his story and retweet to help this go viral #nashneedsellen

[smashSMARD @smashSMARD]

Rolling’ into 2020 like 😎. Here is to already accomplishing new things in 2020! Here’s to a new #ighmbp2 gene in 2020 🧬
#smashsmard #smard #smard1 #savebabynash #nashneedsellen #genetherapy #cmt2s #ellendegeneres @theellenshow @ellentube

[The Doctors @TheDoctors]

Meet 3-year-old Nash! Docs said he wouldn’t live to see his 2nd bday but he keeps defying odds w/his fighting spirit! Nash has a rare condition called SMARD, which has been described as ALS for kids. If you’re able to donate to help Nash & others, visit https://t.co/JAanuczmKC.

[CNN International @cnni]

Brittany Stineman was told her son wouldn't make it to see his second birthday, but little Nash turned 3. Because of his weakened immune system, Nash cannot be around many people for a typical birthday party, so the community decided to throw him a parade. https://t.co/DroZ0Y71wh

[Good Morning America @GMA]

A little boy living with a rare neuromuscular disease just received a parade in honor of his third birthday. https://t.co/kle8buSo3E

[Good Morning America @GMA]

INCREDIBLE: Boy's family told he wouldn't live past 2nd birthday, then they held a parade for his 3rd. https://t.co/KFiYljqEts

[CNN @CNN]

Brittany Stineman was told her son wouldn't make it to see his second birthday, but little Nash turned 3. Because of his weakened immune system, Nash cannot be around many people for a typical birthday party, so the community decided to throw him a parade. https://t.co/TOpYeBMfsv

[CBS Chicago @cbschicago]

Every morning, Brittany Stineman wakes up in a way most people don't.
Once up and about, her mind races with plans - on how to raise money for a cure and care for her son's debilitating disease. https://t.co/S2yPs8u8lV

[KDKA @KDKA]

CELEBRATING LIFE: Nash Stineman's parade wasn't just about turning 3-years-old — it was a celebration of a precious life. https://t.co/5UaCcJwEbw

[hankenstein @hankenstein12]

An excerpt from one of the best articles I’ve seen talking about my nephew, Nash. Thank you @DeseretNews. It’s absolutely beautiful. @TheEllenShow @ellentube @andylassner @smashSMARD @ananavarro @DangeRussWilson @RobbyMook @KimKardashian #smashsmard #savebabynash

[Bobby Stineman @BStineman12]

There are certain things in life that truly make you stop and think, then leave you speechless. This was definitely one of those moments! Happy birthday Nash. @smashsmard cnn jello THANK YOU Lincolnshire Community,… https://t.co/BGrK9PhYGL

[Katie Ussin @KatieUssin]

Nash’s mom said it was a magical day and... “It just made me feel so much more hopeful about what the next year could bring."
#SmashSMARD #savebabynash @smashSMARD
https://t.co/GTP4xZina1