My son Kielan Kenny has a genetic condition 22q11 deletion, his mental health is not taken seriously enough, shame on you Camhs, while we sit here and my child is hitting his head over and over, does he have to be dead before you do anything. #worldMentalHealthDay2022
@NormaFoleyTD1@EmerHigginsTD
OT going into second year waiting.
Myclonus in the hands difficulty eating dressing showering, gait change in the leg.Sensory needs for his Mental health. Comprehensive functional assessment needed to function in his day centre. Early intervention?
@EmerHigginsTD@NormaFoleyTD1
How long do we have to wait for OT support. Myclonus in his hands, gait change, support for regulating his mental health, his day centre is also waiting on there centre to be assessed for his needs.
Wait until he can’t walk and then we will help?
22q and psychosis.
6 1/2 years never ending.
Risperidone, Quetiapine currently on Olanzapine and Aripiprazole still relapsing 3 days every week.
Should be allowed to try clozapine.
Think about the families please.
@MaryButlerTD
22q and psychosis is a never ending journey.
6 and 1/2 years.
Risperidone & quetiapine, currently on Olanzapine and Aripiprazole. Still relapsing for 3 days every week. We should be allowed to try clozapine by now.
Think about the families, please.@Reform_of_Camhs@MHReform
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@CumminsNM@TomClonan I was told when my son was not eating that well, that the SLT run a program to help with eating disorders. We were just called today about an appointment for Tuesday and to bring in food that he eats to watch him eating.
Risperidone,Quetiapine,Olanzapine &Aripiprazole.
Back to square one, Olanzapine which I had high hopes for has stopped working.
Why can’t we try Clozapine, why don’t you have the staff to do regular blood checks.
This cycle never ends.
@CarrollJennifer
Resperidone, Quetiapine,Olanzapine &Aripiprazole
Back to square one, Olanzapine which I had high hopes for has stopped working.
Why can’t we try Clozapine, why is there know one to do regular blood checks. Mental health.
It never ends.
@MHReform@22Q11_Ireland@TomClonan
Risperidone, quetiapine, Olanzapine and Aripiprazole.
Back to square one Olanzapine which I had high hopes for has stopped working.
Why can’t we try clozapine, why is there know one to do regular blood test.
This cycle never seems to end.
@MaryButlerTD@Reform_of_Camhs
@PaulWhiteleyPhD So true, we are still trying to get the mental health right.
But there are more teams involved.
Neurology, Psychiatry, Day service and Respite. Everyone doing there bit, getting him out every day.
There are good days and not so good days.
@NiamhRo19554531@ClarCahill@CMHaughey We were the same 2 years and 2 months, I kept saying it doesn’t suit him. It brought about all the sensory issues,he never had before and it was definitely Akathisia.
He wanted to drive and shower continuously.
@CMHaughey What of other jurisdictions? My autistic son was treated by CAMHS meath east with Resperidone for years. No health checks, no supports just prescription writing. It destroyed him. He's 21 & yet to recover. They told us there was no alternative.
@NiamhRo19554531@ClarCahill@CMHaughey We were the same 2 years and 2 months, I kept saying it doesn’t suit him. It brought about all the sensory issues,he never had before and it was definitely Akathisia.
He wanted to drive and shower continuously.