being a good husband and father is the hardest, yet most rewarding part of my life! 3 smiles that make me want to get better and make the world better each day
@jaredsla If yall had only won a conference championship you could have locked up a spot…. Well always next year! Being entitled is a title yall will always win!
9-year-old Maggie has a rare disease called Limb–Girdle Muscular Dystrophy. It causes progressive muscle weakness and can lead to death 🥺
Before the Rare Pediatric Disease program existed, just 3 conditions in the group had treatments. Since then, 53 vouchers have helped bring therapies to market for 39 rare pediatric diseases, with 74% being the first ever approved.
UNFORTUNATELY THOUGH, THAT PROGRAM HAS EXPIRED!
"The Give Kids a Chance Act” is an even better version of it that Congress has an opportunity to pass! Nothing more beautiful than giving kids hope that they will not have to suffer anymore.
Maggie is asking President Trump to support this program, and if it passes she’d like to visit the Oval Office and dance the iconic “YMCA” with him. 🙏
If you don’t have time to call your member of Congress, please at least help this post go viral! Let’s get Maggie, her brother, and the thousands of other children in America suffering from rare diseases the life-saving care they need. We can do this!