Chris Bedford-Gay

Company director of 15+ years. Founder of FOP Friends a charity for FOP (my son Oliver's condition). Board member of IFOPA. Manchester 829 Round Table chair.

[Sale Beer and Gin Festival @salebeerfest]

Looking forward to this one from @DonkeystoneBrew !

RT for yes, like for no!

[Trafford Council @TraffordCouncil]

💙 We're lighting up the town hall tonight for #RareDiseaseDay and the 300 million people worldwide living with rare diseases.

Oliver, pictured with @CatherineLHynes, lives with fibrodysplasia ossificans progressiva (FOP), a rare genetic disorder.

Info: https://t.co/AtjTaZbUrT

[Sale Beer and Gin Festival @salebeerfest]

We're pleased to announce that we will be serving a range of beers from the great @DonkeystoneBrew and Mouselow Farm Brewery!

[Sale Beer and Gin Festival @salebeerfest]

Here's the drinks list!
(Subject to change)
Join us on 25th and 26th October!

[Sale Beer and Gin Festival @salebeerfest]

One week to go! @ManchesterREH @FOPfriends @samaritans @Seashelltrust @stockportnews

[Michelle Davis @MichelleDavisKC]

Incredible opening from Chris Bedford-Gay encouraging us to all work together toward our shared dream #cureFOP @smuglet @ifopa @FOPFriends

[IFOPA @ifopa]

Wishing our FOP e.V. friends in Valbert, Germany a successful event this weekend! https://t.co/ZIyd1psKVT

[Chris Bedford-Gay @smuglet]

@RaafayAli @riksof not this time I'm afraid looking for local.

[Chris Bedford-Gay @smuglet]

@iamdarrenhall overthewire tweeted for me as I'm looking for php/wordpress dev in Manc. If you follow me I'll pm contact details to chat.

[Chris Bedford-Gay @smuglet]

@bbcsml My small charity helps 1 in 2,000,000. Discussions need to separate between big and small, keep beneficiaries forefront not £££.

[Chris Bedford-Gay @smuglet]

Burgers ahoy on Thursday #FILTHYCOW

[Chris Bedford-Gay @smuglet]

@British_Airways Been on hold over an hour to change flights... terrible service... come on... put more people on the phones...

[Chris Bedford-Gay @smuglet]

@WhatTheFFacts My son age 6 has this, Fibrodysplasia Ossificans Progressiva (FOP) @FriendsOfOliver .

[FOP Friends @FOPFriends]

Waiting at airport for flight to Italy for FOP Italia conference. Representing UK and @ifopa . Chris.

[FOP Friends @FOPFriends]

Help us win £2000 for FOP. Please RT. http://t.co/LeZ3o508ix . @claritypr @simonpegg @jamieoliver @WilliamShatner @GeneticDisUK

[Chris Bedford-Gay @smuglet]

Explainer Videos: Three Striking Stats, Three Tips to Master Them - http://t.co/oXlt8cnG9G via @Shareaholic

[Chris Bedford-Gay @smuglet]

@timlovejoy RT & help stop my son turning to a human statue. http://t.co/IgJJtJyCfJ http://t.co/q7A457tKkg. Thanks @FriendsofOliver #FOP

[Chris Bedford-Gay @smuglet]

@PushONltd RT & help stop my son turning to a human statue. http://t.co/IgJJtJyCfJ http://t.co/q7A457tKkg. Thanks @FriendsofOliver #FOP