Trying to raise awareness for my youngest with Cystic Fibrosis. she loves Disneyland and beach life. #curecf#justbreathe she lives her life to the fullest💜
CF Awareness Month💜
Don’t usually post our Disney pics here but wanted to show a photo of 2 little girls. One with Cystic Fibrosis one who doesn’t! Maddy doesn’t absorb nutrients normal because her pancreas doesn’t… https://t.co/3UOyHlmkCu
@CharityNerds My little girl has Cystic Fibrosis and we would love a donation for her walk coming up next month in San Diego. Link is on Instagram @maddycristina this is so awesome🎉
@realDonaldTrump How is it you are aloud to run this country still? You’re a ass and maybe should think about being a real life @billymaddisonn and go back to school and start with Kindergarten! Waaaaa lost his star @AdamSandler
@cvspharmacy@CVSHealth Why did you change the kids vitamins? My daughter who loved the vegetarian gummies you had for years now!!! Now she won’t even eat her vitamins anymore only her fish and D, please don’t change those too! She’s taken the vitamins for 5 years now! #cfkid
@socalcfmom Hi there, thanks for reaching out. We take your feedback seriously and will be sure to share this with our team for further review. If you have any additional questions or concerns, you can reach our Customer Relations team at 800-SHOP-CVS.
@cvspharmacy@CVSHealth Why did you change the kids vitamins? My daughter who loved the vegetarian gummies you had for years now!!! Now she won’t even eat her vitamins anymore only her fish and D, please don’t change those too! She’s taken the vitamins for 5 years now! #cfkid
@ColtonsLegacy @Colt3FIVE My daughter just turned 6 years old and has Cystic Fibrosis. Two class 1 mutations and has been denied for the vest. If and when she is approved we still have to pay $2,500 out of pocket. We’d love to be considered for a donation.
Hi Cameron- 1) It shouldn’t be used to describe anyone, including my wonderful mother. 2) For decades, people, often older men, have called me ugly, a donkey, a dog. I’m far more upset thousands of Americans died in Puerto Rico post-Maria because we failed them. Blessings to you. https://t.co/vEVy9GuBmp
Cystic Fibrosis is a terminal disease and making Core Memories each day for this amazing young lady means more than you’ll ever know💙💛
#CFawareness @DisneyPixar @Disney @DisneylandAP @CysticLife@CF_Kids @PixarInsideOut @Disneyland
@chris_grainger7@CFAware@cf_ireland@cftrust@CF_Foundation We started using silver daily orally and we also use fish oil, extra d, and I recently started rubbing a coconut blend and essential oils to her feet and spine each night. After doing so for 2 months her culture showed two types of Pseudo were gone.