Janney Wale

Consumer representative and HTAi Patient and Citizen Involvement in HTA Interest Group, Cochrane

[Mike Carlton @MikeCarlton01]

Ridiculous headline, grossly misleading, no doubt from some excitable junior woodchuck on the weekend shift. https://t.co/cVasCsW7Tt

[Janney Wale @socrates1113]

View Perspective chapter: Patient advocacy - From ’a seat at the table’ to equal stakeholders at: https://t.co/H3snr9fr1I
byJanet L Wale, Dominique Hamerlijnck. DOI: 10.5772/intechopen.1005513. BOOK TITLE:  Economics of Healthcare, Studies and Cases," ISBN 978-0-85014-891-6.

[Kalipso Chalkidou @kchalkidou]

Public indebtedness appears to be a major impediment to governments’ investment in health care. https://t.co/gqhCYcHRv3

[Richard Lehman @RichardLehman1]

How many times does this have to be said?

[IAPO @IAPOvoice]

First 2 days of our Unmet Patient Needs Survey have been incredible! 🎉Thank you for taking the time to complete the survey.
If you haven't joined the conversation yet, go to https://t.co/HUxLws4nVe and stay tuned! 😀

[IAPO @IAPOvoice]

We are thrilled by the overwhelming response to our call for action! 🌍 Let's keep the momentum going!
Share this tweet, tag your network, and let's amplify the power of the patient voice together! 🗣️
#UnmetPatientNeeds #PatientVoice #GlobalHealthSurvey #PatientOrganization

[IAPO @IAPOvoice]

Today @IAPOvoice is launching a survey to uncover unmet patient needs worldwide, and we want YOU to be part of it. It's a quick 15-minute survey, and is open until January 15th! Scan the QR code or click on the link: https://t.co/HUxLws4nVe
#UnmetPatientNeeds #GlobalHealthSurvey

[Mike Carlton @MikeCarlton01]

Christ was only born a day ago. But at Coles they’re ready to kill him off.

[Danny Haiphong @GeopoliticsDH]

The U.S. accuses Russia and China of genocide regularly.

Now it is aiding and abetting one in Palestine 🇵🇸 on behalf of Israel 🇮🇱.

The hypocrisy is stunning but not shocking in the slightest.

[HTAi Patients and Citizens Involve Interest Group @PCISG]

It's time for our monthly E-Bulletin! 📰

https://t.co/IgtqsMSIN9

[António Guterres @antonioguterres]

Violence against women is a horrific violation of human rights, a public health crisis, and a major obstacle to sustainable development.

Let’s build a world that refuses to tolerate violence against women anywhere, in any form, once and for all.

[Doctors Without Borders / Médecins Sans Frontières @MSF_canada]

"This brutal annihilation of an entire populations health system stretches beyond what humanitarian aid can fix. Doctors can’t stop bombs. "

Canada must call for ceasefire in #gaza.

[Mohamad Safa @mhdksafa]

You know what else died in Gaza? The myth of western humanity.

[UNICEF @UNICEF]

34 years ago, UNICEF Goodwill Ambassador Audrey Hepburn gave this passionate speech as world leaders adopted the UN Convention on the Rights of the Child.

Today, her words are as important as ever. #WorldChildrensDay

[HTAi Patients and Citizens Involve Interest Group @PCISG]

Keep an eye on these deadlines! ✍️

[Mushtaq Bilal, PhD @MushtaqBilalPhD]

Nature rejected her paper for not being original,

University of Pennsylvania (her employer) demoted her,

and yesterday Katalin Karikó won the Noble Prize in physiology.

In mid-2000s, Karikó and her Drew Weismann submitted their paper on mRNA (messenger Ribonucleic Acid) to Nature.

Nature desk rejected their paper for being "an incremental contribution" only. The paper was later published in another journal, Immunity.

Earlier in her career at the University of Pennsylvania, Karikó was demoted because her applications for grants kept getting rejected.
But Karikó persevered and kept on going.

In 2013, she joined BioNTech, a German company founded by two scientists, Uğur Şahin and Özlem Türeci. In 2018, BioNTech partnered with Pfizer to develop mRNA vaccines against the influenza virus.

When the COVID-19 hit the world, Karikó's research helped Pfizer to produce the first vaccine against the disease.

I don't know how the Nature editors who desk rejected Karikó's paper and the Penn administration who demoted her feel about Karikó Nobel Prize.

Takeaway: Many academics and scientists worry about getting published in "prestigious" journals. Instead of worrying about prestige, we should try to put our work out as quickly as possible like Karikó did.

Once you put your work out without caring about prestige, two good things happen:

1. Your work will lead to newer opportunities.
2. You will start getting feedback from the scholarly community, which you can use to iterate and improve.

Here's another interesting Nobel Prize story.

Peter Higgs, a British physicist, joined the University of Edinburgh in 1956. By 1964, Higgs has published his groundbreaking work about subatomic particles.

After 1964, Higgs published less than 10 papers.
When his department would ask him how many papers, he published in a given year, he would reply "None."

It happened so often that he stared feeling like an "embarrassment to the department."

The University of Edinburgh, however, never fired Higgs because in 1980 he had been nominated for the Nobel Prize.

Higgs retired in 1996 and stayed on as an emeritus professor at Edinburg.

In 2012, experiments conducted at the CERN laboratory confirmed Higgs work and the existence of Higgs Particle.

And in 2013, Higgs was awarded the Noble Prize in physics and the University of Edinburgh got rewarded for being patient.

[Dr Jackie Street @JackieMStreet]

I will be working on this project. Australian followers: I would be grateful if you could retweet or forward to interested parties. Thanks!

[politic@l spinner @Justabogan]

If this is true why is everyone worried? #auspol

[Prof. Karen Woolley @KWProScribe]

It was an honour to work with Kawaldip (RIP). He was ahead of his time in seeing why patients should be involved in peer-reviewed publications. There are fewer doubters now! #PatientAuthor @IAPOvoice @ISMPP @MAPSmedaffairs @ARCSAustralia