@chydorina And when I say the “doors are blown open” I mean fibro pain, circadian cycle, gastrointestinal symptoms, vision, joint pain/flexibility brain clarity - symptoms related to all of these biochemical pathways seemed to correct themselves.
@chydorina Yes I believe it’s the only company that makes it. They also have a brand marketed for PMS on Amazon which is 100mg oxaloacetate per capsule. We tried this first & took 100-200mg the first few days. Now we get the 500mg caps through our dr who now has a wholesale account for us
@chydorina And when I say the “doors are blown open” I mean fibro pain, circadian cycle, gastrointestinal symptoms, vision, joint pain/flexibility brain clarity - symptoms related to all of these biochemical pathways seemed to correct themselves.
@BillBottrell@jenbrea I believe there are a large subset of ME patients with similar diagnoses - including this and various other connective tissue problems.
@MECFSNews I think at the very core of each person is the fear of not being in control. Acceptance of our illness stabs right to the heart of this fear & most people - even drs, whether they know this consciously or not, want to believe that a person can will his/her/their way out of it.
@johnpauldickson@WheatonCollege Hi John! I loved my Christian history classes at Wheaton & I believe that modern Christians should’ve been taught the whole Xian story as well. Most do not have enough historical perspective as you & others in this thread have. For me - it has grounded and saved me in these times
@amybtatom @AHinkle628 @MelanieWeckert Are you attending the Dysautonomia International conference next month? They have an online option - but this is a great resource and they have the top POTS researchers speaking.
@dysclinic Do you test for alpha 1 adrenergic receptor antibodies? Because Dr Blair Grubb et al found 89% POTS patients studied to have them. And NO one will look at that and do anything in the US. Have to send labs to Germany…
@tessfalor How do my daughters and I join the study? I’m 30+ years with ME (with a few remissions and two severe periods) and both of my adult daughters are sick with ME and with GI MAP markers that seem to line up with recent research.
@jill62387441@JanetDafoe Me too! I got sick around 1988 & there was no Google as you know. Found Dr Klimas in a library card catalog then in a journal of immunology I believe. That’s all we had to go on. Fast forward to a relapse in 2017 & I googled her clinic & they got me to about 80% functionality.