Heartfelt thanks to @iprdkerala for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to @KeralaHealth for their unwavering support to patients with SMA! #SMAawareness#KeralaHealthcare
Meryl sarah Mammen , pompe patient, daughter of shibu Mammen whose life was saved by @ONGC_@ChairmanONGC . Same way please help and Save #varunikasri SMA type 1 baby daughter of Mathiyazhagan ongc senior engineering assistant in cauvery asset Karaikal.
#InternationalPompeDay 'I was diagnosed to only live till 30 years of age, now I am 31 and I am still alive. So, ERT has saved my life': Meryl Sarah Mammen, Pompe warrior on International Pompe Day
#InternationalPompeDay 'I was diagnosed to only live till 30 years of age, now I am 31 and I am still alive. So, ERT has saved my life': Meryl Sarah Mammen, Pompe warrior on International Pompe Day
Save Baby Varunika Sri: A Fight Against SMA Type I
Four-month-old baby Varunika Sri has been battling SMA Type I, a rare disease. We urgently need ₹16 crore for life-saving treatments ZOLGENSMA, and humbly request your generous support.
Read more-https://t.co/oYECm5PjKt
#savevarunikasri please help my baby varunika sri SMA TYPE 1. Need 16 crore injection zolgensma which is imported from America. Please share ASAP 🙏. For more information -6369428386