People with #chronicillness in the #NEISvoid are worth being seen and supported! I challenge each of you to share this video so we can spread awareness about how we #spoonies live our lives!
https://t.co/WKgEmIv0he
This month my local library is challenging the community to read a book that either has a main character with or is about invisible illnesses. I'm so here for it! What books have you loved that have characters with a #chronicillness? #Spoonies#neisvoid
I know there are a lot of GoFundMe's being circulated, but this one is for a family member who desperately wants to regain freedom by getting a new wheelchair. Every dollar helps! https://t.co/RXIK85iD4N
After last night's night-sweats, I went through 5 changes of clothes. At work right now, utterly exhausted, but refusing to miss out on an important meeting. I'm currently drinking the lowest caffeine tea I could find (needed a little boost), and it tastes like the smell of A&D.
I went away for a work conference (it was great!) and am now suffering the post-excitement hangover. Brain fog. Unstable mood. Exhaustion. I feel better knowing what it actually is as opposed to thinking something else was wrong. Guess I'm watching zoo shows in pjs today.
Before leaving for my conference, Luca said "but I don't want you to go to Hogwarts!" I'm proud that he made a Harry Potter reference and honored that he thought I was cool enough to go to Hogwarts!
People don't realize that with chronic illnesses, you mourn the life you used to leave and the one you thought you were going to lead but now can't. Every time an illness steals something else from you, you go through the entire process all over again, as if it was the first time
Iβm still in here somewhere I tell myself.Fibromyalgia has stolen so many things from me.I have trouble accepting that I cannot do the things I used to do.Then there is The Judgement and Family&Friends who donβt understand.This is effecting my Mental Health.Does anybody resignate
You cannot see strength from the outside. True strength and resilience cannot be perceived with the eye.
Make no mistake. I have never been more resilient. I have never been more true to myself. I have never been stronger.
If you know someone with a chronic illness that lost power due to recent storms, check on them! They may be desperate for power so they can utilize the devices that keep them alive and safe!
I've learned through Spoon Central how much I love advocating for people and impacting change! Thank you all for being part of my self-discovery journey!
Still sick (not covid)...starting week 3. Let's see what the doctor has to say. On the bright side, my students pay closer attention to me because of my sick voice. They want to laugh (it souns funny so I encourage it) and actually hear what I'm saying.