Leah | Spoon Shares

social distanced before it was cool #spoonie #EDS #GP #POTS #NCS #MEcfs #Narcolepsy #TPN #Tubie Nerd stuff: @leahismagical

[Leah | Spoon Shares @spoonshares]

"I was perfectly healthy until I wasn’t. I say that a lot, because I think that’s what most people don’t understand."https://t.co/M2CnQPvqzG

[Leah | Spoon Shares @spoonshares]

@RepHoulahan thank you for your vote, Congresswoman!

[Leah | Spoon Shares @spoonshares]

@RepHoulahan Proud to have voted for you. Thank you for the courage of your convictions and voting to support our democracy and defend against hate, lies, and violence!

[Leah | Spoon Shares @spoonshares]

It would be cool if John Mulaney checking into rehab was like the Tom-Hanks-Getting-Covid of pandemic mental health assessment and treatment.

[Leah | Spoon Shares @spoonshares]

@allylovespono @jenbrea Not to encourage confirmation bias, but 🙋🏻‍♀️ me too! Alpha 1 (carrier, not full blown), EDS, ME/CFS, atlantoaxial instability, POTS, the usual. But the alpha 1 and the EDS come from different branches of my family. So who knows ¯\_(ツ)_/¯

[Therese @ThereseARus]

@60Minutes @andersoncooper When you frame the long-hauler crisis as “like nothing we’ve seen before,” you’re telling the wrong story. Post-viral, multi-system illness like #ME/CFS has been well documented after many epidemics. Experts expected this post-Covid pandemic. https://t.co/aLb5x45Fzf

[Leah| MagicalWorldOf @LeahIsMagical]

Y’alls. I was at a doc appt yesterday, f/u for my chronic illness, which started with a viral infection. The doc said they were seeing many former covid patients developing my same chronic, debilitating autonomic dysfunction.

This doctor was not wearing his mask properly.

[Jennifer Brea🦒 @jenbrea]

What's out of the ordinary is everyone else has more time and wants to hang on video chat!

[Leah | Spoon Shares @spoonshares]

I retweet more stuff from Jen Brea and @careful_c than my own stuff at this point but...very much this!

[Jennifer Brea🦒 @jenbrea]

I am so used to being inside, in bed, Twitter's the only way I know something is not normal. It's truely a strange feeling. I understand how hard it is, for so many people, for so many reasons: economic, social, familial, practical, emotional. But for me...THIS is ordinary life.

[Alex גדעון בן װעלװל @JewishWonk]

Rivers of blood
A global plague

It's a thrilling time to be a first born son

[Leah | Spoon Shares @spoonshares]

Hey one of my best friends since I was 9 is a hospital nurse and she’s using her day off to bring supplies to the doorstep of a sick friend and she doesn’t deserve the hell you bring onto her if you decide to end your social distancing early cuz you’re bored stay the fuck home

[Leah | Spoon Shares @spoonshares]

Yalls please remember this when you vote every time for the rest of your life. Politics isn’t ideological. It’s personal. People are suffering because of who we elected.

[Leah | Spoon Shares @spoonshares]

@WhatsWrongWhit Epstein Barr Virus right here! Gastropareis, POTS, ME/CFS, some form of rhinitis/MCAS (doctors disagree). Underlying hEDS that wasn’t a problem until EBV 9 years ago. I was 21 ¯\_(ツ)_/¯

[Helen Gym @HelenGymAtLarge]

The City's paid leave policy expanded to cover people who need to stay home or can't work during #COVID19.

Find out if you qualify and how to get help if your employer denies your right to paid leave ⬇️

[Leah | Spoon Shares @spoonshares]

Step 1: have friend who is #chronicillness ally
Step 2: friend adds @unrestfilm to syllabus for college writing course on disability
Step 3: student inspired to become a medical researcher who may one day crack the code on #MECFS

Grateful to those who teach and those who learn

[Leah | Spoon Shares @spoonshares]

This feeling so very much.

[Jennifer Brea🦒 @jenbrea]

I wish I wasn’t sick (again).

There is so much I wish I could be doing in this moment.

It is so hard to want to help and to feel powerless.

My gratitude to every nurse and doctor risking their lives.

My gratitude to everyone fighting this pandemic, however they are able.

[Leah | Spoon Shares @spoonshares]

#2020InOneWord

[Leah | Spoon Shares @spoonshares]

Site I designed: https://t.co/qAjWiWkTGC
Sites I manage: https://t.co/jyYXb14zd7
https://t.co/pLpeVCp6PD

[Leah | Spoon Shares @spoonshares]

I’m literate enough to design a basic website. Not a professional, but I’ve made a few in the past and I have family who work in web marketing. If anyone with info on #millionmaskchallenge #MillionMaskMayday want to DM me, I’m happy to help however I can!

[Jennifer Brea🦒 @jenbrea]

The hashtags #millionmaskchallenge #MillionMaskMayday need to become a well-organized website for this very reason. I don’t have the capacity at the moment to try to take something like this on but really hoping someone does.