SRFCure

America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.

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Earlier this week, SRF leaders joined clinicians and scientists from around the world at the ACR Convergence conference in Orlando, FL.

Pictured: CONQUER Research Coordinators at this year's meeting

Learn more about CONQUER: https://t.co/4DPiEgl797

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November is Pulmonary Hypertension (PH) Awareness Month, which is an opportunity to shine a light on this condition and how it affects people living with scleroderma.

Learn more about the importance of PAH screening: https://t.co/gNKGOplcdl

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Join our friends at SPIN for their online event on November 21! 📢

🗓️ Saturday, November 21, 2026
⏰ Presented in English: 4–5:30 PM EST; presented in French: 12–1:30 PM EST
🌐 Virtual, international, and FREE

Learn more and register: https://t.co/nhP8RSoZJn

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November is PH Awareness Month—learn how this condition impacts the scleroderma community and why early screening matters 🫁

Explore the new PAH Awareness page on the SRF website: https://t.co/gNKGOplcdl

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💡Check out the latest research updates from the wider community this month: https://t.co/yXwlLJe8zN

While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma.

[SRFCure @srfcure]

Participation in CONQUER helps accelerate advances in scleroderma care. 🔬

Launched by the SRF, CONQUER is a first-of-its-kind nationwide scleroderma patient registry aimed to improve care and develop more effective, personalized therapies.

Learn more: https://t.co/cl871rCID3

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Curious about clinical trial safety? Swipe for the basics every participant should know. ➡️

Want to know more about how trials work and how to take part? Visit our Clinical Trials and Scleroderma FAQ: https://t.co/czMTOATqpF

#Scleroderma #ClinicalTrials

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Today, we’re celebrating SRF founder Sharon Monsky's birthday by revisiting her 1988 appearance on CBS News Nightwatch, where she helped bring national attention to scleroderma.

Learn more about how her vision shapes what we do: https://t.co/AzyIQcU7iW

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“I learned with scleroderma that your worth is so much more than just this disease,” says Alfa B. (dx 2022). In this video, she opens up about her scleroderma journey, from diagnosis to learning to listen to her body and enjoy life again. 💙

#SayScleroderma #sclerodermaresearch

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Diagnosing scleroderma takes time and multiple steps.

Learn about how doctors approach it: https://t.co/7mFgolyhNx

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Can scleroderma go into remission? Dr. Gordon breaks down how this concept applies to people living with scleroderma.

Read the full column here: https://t.co/l9RG8IRgvW

[SRFCure @srfcure]

Cool Comedy • Hot Cuisine raises more than $1M to help end scleroderma!

Last night, the Beverly Wilshire buzzed with energy and excitement as hundreds of people joined together for one purpose: to end scleroderma.

Read more about this year's CCHC: https://t.co/REKgEdIFiU

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Scleroderma can affect tendons, joints, nerves, and other structures that impact mobility — leading to stiffness, pain, and in some cases, contractures. Learn more: https://t.co/MSwoD6qr4E

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"He is a DIY guy with a degree in electric engineering, so there really wasn't anything he couldn't do! He was in the peak of health and felt incredible," says Naomi W. of her husband Stephen (dx 2025).

Read their full story on our website: https://t.co/HGRjnLPufE

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Check out the latest research updates from the wider community last month: https://t.co/vvAKIs6zXX

While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma.

[SRFCure @srfcure]

Scleroderma renal crisis (SRC) is a serious but treatable complication—sudden high blood pressure (above 150/85mmHg) is the key warning sign. Early detection is critical. Learn more: https://t.co/PzrYpt4dfQ

[SRFCure @srfcure]

Help advance scleroderma research through the CONQUER Registry 🔬

Learn more about how you can get involved on our website: https://t.co/cl871rCID3

[SRFCure @srfcure]

Does scleroderma affect a transplanted lung? 🫁

After a lung transplant, the patient's scleroderma will not directly affect the new lungs. But that does not mean there are no concerns. Learn more: https://t.co/ofnPuVj8hb

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Offer your perspective directly to the researchers working on future treatments. 🌐

Program members may receive invitations to participate in patient advisory and focus groups, surveys, interviews, and other activities.

Learn more and join: https://t.co/dv7Wr7AwaE

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“This new line of SRF merchandise has given me another way to spread the word," says Jane J. (dx 2008).

Read her full story: https://t.co/ryFDDfYr78