SRFCure

America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.

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"People pay attention to clothing, so by wearing my sweatshirt out, I know that it can either start a conversation about what scleroderma is, or people can google 'scleroderma' on their own," Alex P. (dx 2022) says.

Grab some gear at the SRF Merch Shop: https://t.co/VWWyBHsCd3

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Register now for the SRF Scleroderma Patient Forum: https://t.co/sVdAkwJm6x

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Check out this clip to hear why Tomisa S. (dx 1993) is joining us on June 11 for the 5th Annual SRF Scleroderma Patient Forum!

Sign up using the link in the first comment below!

Thursday, June 11th
9:00 am PDT / 12:00 pm EDT
FREE and online

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June is here—and so is Scleroderma Awareness Month. We’re asking you to say it with us: #SayScleroderma. 📣

Every way that you #SayScleroderma brings us closer to a world where scleroderma is understood, treated, and one day cured. Learn more: https://t.co/9GVAovZMwh

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Register for the 5th Annual Scleroderma Patient Forum: https://t.co/sVdAkwJm6x

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Paul D., dx 2022, invites you to join him at this year's Scleroderma Patient Forum! There's still time to register for the SRF's annual educational event:

Thursday, June 11th
9:00 am PDT / 12:00 pm EDT
Online & FREE to attend

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It’s almost Scleroderma Awareness Month–swipe through to see how you can get involved and #SayScleroderma! ➡️

Discover Scleroderma Awareness Month resources: https://t.co/J4nabIcqkw

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Clinical trial eligibility can sometimes seem confusing, but the criteria for enrolling are rooted in the science of how scleroderma progresses.

Discover information about clinical trials for scleroderma: https://t.co/WO4gilIOs4

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"She handled everything that came her way with so much grace and strength, and she never complained," says Taylor S. of her late aunt Carol (dx 2023).

Read the full story: https://t.co/zG6hkBfUiR

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Register for the Scleroderma Patient Forum: https://t.co/sVdAkwJm6x

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Check out this highlight from Dr. Torok's presentation from the Scleroderma Patient Forum archives on what makes scleroderma unique in kids. This year, she's back and joined by colleagues to dig into what that means for managing it.

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Join the 2026 SRF Annual Research Challenge and help fund the science that brings us closer to a cure for scleroderma.

Your generosity supports scientists dedicated to defeating this disease, like Joe DeRisi, PhD, at UCSF.

Double your impact today: https://t.co/ynXwMMqbzK

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May 17 is a day we hold close, as it would have been Bob Saget's 70th birthday. He was a brilliant comedian, a beloved SRF Board Member, and was a champion of the scleroderma community.

Today, we remember him with love and honor his commitment to finding a cure for scleroderma.

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Learn about how gastrointestinal (GI) complications affect people living with scleroderma at this year's Scleroderma Patient Forum.

Register for the event here: https://t.co/tJuajAzcxq

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What can cause oxygen levels to suddenly drop in people with scleroderma-ILD, and what warning signs should patients watch for? 🔎

Read more about scleroderma-ILD here: https://t.co/jUEMtv1TOL

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This year's Annual Science Workshop—which took place this past weekend on May 8 & 9— was an intense two-day collaborative research event that serves as a cornerstone of our Research Program. 🔬

Learn more about the Annual SRF Science Workshop: https://t.co/UYaIPpG6V0

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"As a mom living with scleroderma, it required my boys to grow up quicker than they should have." Kori W. (dx 2022) says of three sons. Join us this Mother's Day in celebrating moms like Kori.

Read her full story: https://t.co/RjRKd9EYed

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Today we're celebrating a birthday of someone very near and dear to our hearts—happy birthday to the one and only Susan Feniger! 🎂

Susan, the work you've championed has moved research forward and touched the lives of so many. We are so lucky to have you on this team.

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Just announced for the Scleroderma Patient Forum: a new session exploring how scleroderma affects the lungs 🫁

Sign up for the Scleroderma Patient Forum: https://t.co/eQbeLBV8j3

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There is growing interest in using AI to help discover new medical treatments, including for scleroderma.

While still in its early stages, AI has the potential to transform the drug discovery process.

Read more about AI in scleroderma research: https://t.co/UsSCtOjh4v