@IBSpatient@TrainWithBain Just taught my grandma how to use zoom the other day- love her to death but man was that a time 😂😂 a good reminder of what I take for granted! #WEGOHealthChat
I need to do some sort of breathe work everyday or else I will honesty lose my mind. As someone with anxiety, this situation is obviously making it skyrocket. Sometimes it’s an hour of yoga, sometimes it’s a 3 minute breathe exercise #WEGOHealthChat
Boundaries. And most likely will continue to be something I work on in 2020. Learning to say no to helping someone in order to help myself gives me so much anxiety (guilty people pleaser🙋🏽♀️) but you can’t get far living for others! #WEGOHealthChat
Q4. What was your biggest challenge in 2019?
Whether it was your health, a new policy, learning new social algorithms, finding the courage to start your own Youtube channel or simply learning to not take what online trolls say seriously. #WEGOHealthChat
Hard no. I didn’t even touch my blog. BUT I started more offline advocacy and I think that’s more my style. My #mentalhealth dwindles when I’m on my phone or social media and 2019 has been the year of accepting that and finding a new path #WEGOHealthChat
A year ago I said 2019 was the year of my advocacy. I told myself I’d blog more and get more content out there! A big goal, and one I’ve had for two years now tbh #WEGOHealthChat
Q1. Looking back a year ago, did you set any specific advocacy goals to achieve in 2019? If so, what were they?
If you hadn't, are there any smaller goals you've set throughout the year? #WEGOHealthChat
MYTH treatment means you’re cured. Especially in the mental health/eating disorder space, I’ve been through three rounds of treatment and see a team regularly- doesn’t mean I’m cured by any means! It’s still a daily battle #WEGOHealthChat
T4. Let's talk about care, treatment, and/or medication.
Can you share a common myth (M) about this topic? Again, feel free to speak generally or condition-specific.
#WEGOHealthChat
TRUTH if you don’t like your doctor or feel your needs aren’t being met, you can find a new one. It’s a hassle yes but overall I think patients forget the doctor is a service, if your plumber stinks you get a new one! Same with your medical team #WEGOHealthChat
T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals.
Ok, time for a truth (T) about doctors and healthcare professionals.
#WEGOHealthChat
T3 TRUTH Doctors are people too. They’re tired, overworked and dealing with personal issues just like you. They are people trying to do their job the best they can. They got into the profession to help others. ***most of them at least, again always a bad apple #WEGOHealthChat
T3. For our next batch of myths & truths, we’ll turn it around and focus on doctors and healthcare professionals.
Ok, time for a truth (T) about doctors and healthcare professionals.
#WEGOHealthChat
Patients aren’t trying to show doctors up (well most of us). We just want answers and we want to be healthy. Coming in with notes or suggestions doesn’t mean we don’t trust you, it means we’re ready to work together to get the progress we’re striving for. #WEGOHealthChat
T1. Our first topic will be myths & truths about: Patients
Now share a #truth (T) about patients. Again, feel free to speak condition-specific or generally.
#WEGOHealthChat
T2 Myth: doctors don’t care. I hear this a lot, and although there are certainly some bad apples out there, I stand by my statement that this is a myth for many #WEGOHealthChat
T2. Our second topic: Let’s share myths & truths industry professionals (doctors, the media, HC Cos, etc) have about empowered patients.
Up first, share a myth (M)!
#WEGOHealthChat
As a mental health patient, my credibility is shot as soon as a doctor looks at my chart. Yes I’ve been in psychiatric treatment facilities, but no I’m not crazy and yes I know what I’m talking about. So many times I get brushed aside because of my diagnosis #WEGOHealthChat
T1. Our first topic will be myths & truths about: Patients
First up Myth #1:
Share a myth (M) people have about patients. Feel free to speak generally or condition-specific.
#WEGOHealthChat
Today let’s run the #WEGOHealthChat a bit different:
We'll discuss 5 different topics (T1, T2, T3 etc).
* Part 1 of each topic will be sharing a #myth (M) about the topic
* Part 2 will include following up with a #truth (T).
Patients are part of the healthcare ecosystem. To have them not included at industry conferences is just not efficient. They are key players in the system, they need to be involved #WEGOHealthChat
(2/2) My point is, you finally find the strength to tell your doctor and then their response can crush you. You have to find the strength to keep going and find someone to fight for you- but that requires you to fight for yourself #WEGOHealthChat
Hating pharma and doctors won’t solve a thing. It’s going to take a conversation and understanding from all sides to actually create the shift in healthcare we all envision. Which means including patients voices at the table is vital #WEGOHealthChat
Q4: What advice do you give patients when it comes to connecting and collaborating with their healthcare teams to improve health and treatment?
Question suggested by @LALupusLady#WEGOHealthChat#WEGOHealthAwards