SSSCFoundation

Samira Sanusi Sickle Cell Foundation is a Non-profit, Non Governmental organization dedicated to catering for Sickle Cell disease patients.

[SSSCFoundation @ssscfoundation]

Do NOT stop Voxelotor abruptly, consult your doctor about weaning off the medication.

[SSSCFoundation @ssscfoundation]

If you’re taking Voxelotor, please stop & consult your doctor immediately! Pfizer issues global market withdrawal of Sickle Cell Disease therapy Oxbryta. The data suggested the overall benefit no longer outweighs the risk.

[SSSCFoundation @ssscfoundation]

Pfizer issues global market withdrawal of sickle cell disease therapy Oxbryta https://t.co/ehZeZUBpVG

[SSSCFoundation @ssscfoundation]

Check our page on IG - @ssscfoundation for a yummy giveaway! #SickleCellAwarenessMonth

[SSSCFoundation @ssscfoundation]

#SickleCellAwarenessMonth is coming to an end. Donate now to support our Warriors in these trying times. No amount is too little ❤️

[SSSCFoundation @ssscfoundation]

A question that can save lives and ensure generations to come are free from the pain, complications, stigma and suffering of Sickle Cell Anemia. So, do you know your genotype? #SickleCellAwarenessMonth

[SSSCFoundation @ssscfoundation]

#SickleCellAwarenessMonth is coming to an end. Donate now to support our Warriors in these trying times. No amount is too little ❤️

[SSSCFoundation @ssscfoundation]

It’s #SickleCellAwarenessMonth and your change can make a change. Donate now to support our Warriors from low income families.

[SSSCFoundation @ssscfoundation]

A question that can save lives and ensure generations to come are free from the pain, complications, stigma and suffering of Sickle Cell Anemia. So, do you know your genotype? #SickleCellAwarenessMonth

[SSSCFoundation @ssscfoundation]

#NewProfilePic

[SSSCFoundation @ssscfoundation]

Kano state recently passed a bill mandating Pre-marital health screening before marriage. What are your thoughts and suggestions on how these policies can be implemented to prevent more Sickle Cell births? #WorldSickleCellDay

[SSSCFoundation @ssscfoundation]

It’s that time of the year again, and the theme this year is “Hope Through Progress: Advancing Care Globally.” Do you think Nigeria has made significant progress in Sickle Cell Management, Treatment and Research? Are existing treatment protocols still effective? #WSCD24

[Nguvu Collective @nguvucollective]

Sub-Saharan Africa bears the highest burden of sickle cell disease globally. As we mark #WorldSickleCellDay, join us for a chat with @ZTawo, @Saamira_S and Mariya Bagudo moderated by @EbenezarWikina to discuss Nigeria's premarital genotype test bill: https://t.co/U2ioCeS1jN

[Samira Haruna Sanusi @Saamira_S]

Mark your calendars for this enlightening conversation in commemoration of #WorldSickleCellDay

[SSSCFoundation @ssscfoundation]

Good news! @bluestream is running a FREE CONSULTATION CLINIC for Sickle Cell Warriors, starting today. Visit them at No.14 Lobito Crescent, Wuse 2, Abuja.

[SSSCFoundation @ssscfoundation]

Free consultation for Sickle Cell Warriors seeking second opinion and Bone Marrow Transplant counseling.

[SSSCFoundation @ssscfoundation]

❤️❤️❤️

[SSSCFoundation @ssscfoundation]

Dear Warriors, it’s been a long year so congratulations on coming this far.

Quote this tweet by describing how 2023 has been for you, using emojis only.
#StayStrong #KeepFighting #WarriorsNotSicklers ❤️

[SSSCFoundation @ssscfoundation]

How many more Warriors are we going to lose before there’s better management, treatment, research, policy change, accessible and affordable cure for Sickle Cell patients?

[SSSCFoundation @ssscfoundation]

May the soul of Rahab Peter rest in peace. She was a strong warrior who survived Boko Haram insurgency, lived in IDP Camps under harsh conditions but stayed positive. Rahab learnt beadwork and other crafts which we helped market and sell so she could earn and manage her health.