Night flight hell. No offer of an upgrade despite paying through the nose for premium. Flight VS128 JFK to Manch. Virgin need to have a word with themselves. Space up front as well…..poor service, v poor @richardbranson@VirginAtlantic
@RichardEGrant @The_Lowry Having lost my wife 2 months ago it was cathartic to hear and see your true emotion and love for your wife and family. A great evening, hilarity and heartbreak…..awesome 👍
@BBCBreakfast@sallynugent my wife was diagnosed at the same time as Rob however sadly lost her battle on the 4th Sept 2022. To live as a young family with this disease is the toughest thing we’ve ever done. The individuals suffering is immeasurable as is the families. Please keep promoting x
So much of this rings true. The pain and anguish, emotional torment, the not knowing. My children have watched, heard, felt this for 2.5 years. Their mum diagnosed in a Jan 2020 has been trapped, in pain and left to suffer by the authorities. Let’s find a cure @mndcampaigns
❗️Urgent #United2EndMND action: It's been 6 months since the PM agreed £50m funding for targeted #MND research but scientists are still waiting.
Urge Ministers @KwasiKwarteng & @sajidjavid to remove the barriers to this funding today!⬇️
https://t.co/86D13Mf2ch
@onein300@BorisJohnson@sajidjavid@GillianKeegan@AmmarAlChalabi@sean_uk Just another criminal act from a government who can’t keep to their promises. My wife continues to fight her battle as do my 2 x children who see the daily torment this disease has brought to our family. A shameful system. Sort it out, it’s as simple as organising a party !
We need to keep helping so the future can be brighter for so many families.Michael Starkey is fundraising for Motor Neurone Disease Association. Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/FNYseqvKqE
Up to date facts of Motor Neurone Disease. Every week in the #UK alone 42 people die. A person's lifetime risk of developing MND is around 1 in 300. #NoCause#NoCure for #MND#ALS#EndALS#EndMND
This is amazing news. It could not have happened without you and your wonderful team fredi. Thank goodness I was lucky enough to meet you, sally and Claire. You have been the deciding factor in the u turn of government. Thanks so much for every sufferer x
A researcher at @neuroshef is looking for people with #MND and their carers to help inform the design of a study into how decisions about feeding tubes are made.
If you’d like to be part of this online patient and carer group, please contact [email protected]
Rob Burrow: #MyYearWithMND may not have won this time but it's a winner in our eyes. The awareness it's raised of motor neurone disease has been incredible.
Thank you to @Rob7Burrow and his family for selflessly sharing their story.
Well deserved @KateGarraway 👏 #NTAs#MND
Living with MND, trying to do everything run a normal family whilst juggle the physical “everything” - daily dressing, washing, showering, feeding, toileting of a loved one suffering with MND is almost the impossible. I like Lyndsey will never give up the fight #MND#care
WATCH: I had great pleasure of talking to @Rob7Burrow and his wife Lyndsey for @itvcalendar tonight. Inspirational but clear Rob thinks it could have been different if we hadn’t had #pandemic#MND@leedsrhinos
The most devastating of illnesses. The cause isn’t known, there is no treatment, there is no cure. It is 100% fatal. MND takes away the body’s motor functions one by one, day by day. You lose the ability to use limbs, swallow food and even speak. Then you can’t breathe.
#MND#ALS
@Orrellbakehouse@TrevorPGerrard@chrismarkgibson Rigby Arms wavey. Buddy likes it up here. £5 a pint. If I had a keg and a pump (Chris), I’d be opening my garden to the locals for £4.50 a pint, make a killin